WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. Most recently, I was chosen to sing the national anthem at the Be the Match Run in Sept and was asked to do it again this year. My team, no thanks to me, raised over $4,000 and raised more than any other team! I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Thursday, February 23, 2012

2/23 Photo Blog

Barbara and me at Pink Out to see the gym dogs!

We got to hang out with Ben and Amy Jo at the gym dogs. 

I was the last child to get a balloon, I think it was because I stuck my bottom lip out when he said  he was not doing any more. He was awesome, might have to use him for a B day party. Mine of course. 

This is the "ok I'm smiling now let me watch Kipper face."

Learning to ride and wear her helmet!

We are cheaply redecrorating our room a little. It only took  10 years to find another 70's  green lamp that is close to my other one. I'm going to get matching lamp shades, we are getting two twin yellow quilts (we don't share blankets due to our selfishness during sleep) and I'm thinking about a tree mural on the wall beside the bed that I will paint. Very exciting. 

Never thought I could be so excited about a scale, never had owned one until oral chemo made me weigh myself . I saw this at my cousin Amanda's house and flipped out and begged her to give it to me and I would give her mine.... it's meant to be in my bathroom. She's so sweet. That was after I got skin cells all over her house. 

The cross the Katie sent me as a gift goes perfect in my kitchen. Need to take a better pic. 
video

Posted by at
Labels:

2 comments:

  1. We are big Kipper fans around here...the books are awesome too!

    ReplyDelete

  2. We don't have any of the books yet. I like him too... but always wonder why everyone has a name except Pig. Evalyn laughs out loud at that show and it's very calming. Got the song in my head right now.

    ReplyDelete

Subscribe to: Post Comments (Atom)