As I said in the last post, I'd rather be writing about the hostel and the beach, and I will when I'm hooked up for the next two days. The diarrhea continues and I'm unable to keep with my fluids or electrolytes. They are trying to keep me from being admitted of course. Mon- fluids in Athens, Tues- potassium and magnesium in Athens, Wed- labs and blood work at Emory, this Thursday and Friday and possibly Mon and Tues, fluids and whatever else I need in Athens. Unbelievable that I will be at the doctors office 5 days this week. Food is not my friend. I'm so hungry but get get sick every time I eat something, having painful cramps, and was now told I have to have another colon scope last week to make sure, again, that it is the GVHD and not the study med. So of course I had a bunch of med changes and I'm off the oral chemo for a bit. Boy, this liquid potassium tastes worse than any medication I have ever had, even mixed with juice. Hopefully, I won't need that for long. It's just hard getting sitters, rides, food and laundry done, and all the other things I'm suppose to do. I haven't been able to go to any exercise classes this week. Have not followed up on PT, eye doc, dentist, bone density, and probably a few other things.....
I have had some "divine appointments" and have gotten to meet some new people and run into some old friends. I won't put their names yet until they decide if they want to contact me. We discussed things that a lot of people do not know like coconut water helps with cramps, aloe juice helps with your gut, flax seed helps with hot flashes, you can ask for gel cap potassium pills instead of the huge white ones, there is a washer on the 7th floor, where the good food is outside, free museum passes, Andres's Essential Soaps here in Athens, and so on. One guy, super nice, seems like he misses his home college town and would like to come to Athens sometimes. He is getting chemo and has leukemia. I meet another girl, through mutually admiring each others earrings, and then she gave me a pair that she made! She is super nice and I hope that she gets in touch with me. She is fighting breast cancer. I saw my friend Amanda today and she is getting her BMT on June 9th. I also spread word about the BE the Match run and hopefully got at least three more people to sign up for the run/ walk.
Somehow made it to small group tonight, the grace of God, and it was good to be around friends and to pray for them and have prayer over us.
Please pray for my strength, for God to give me enough to take care of myself and my little girl. Pray for us as we deal with Jonathan getting laid off and trying to find another job. Please let us know how we can pray for you!
Love you,
Heather
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