WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, June 11, 2012

Evalyn's says "I'm not a baby.....


Evalyn is doing great! She is learning so much I can't keep up with all the words. We are working on please, thank you, help, not screaming, or repeating things 20 times. She seems like she has some allergies and I hope that it is not a cold. She is so sweet and funny and makes up songs and  dances. Well, we are well into the "terrible two's" It doesn't seem to be terrible to her but to I think although it's hard for everyone, parents that are dealing with money and medical issues, it makes it even harder to be consistent. She knows time out, but if you say, if you do that one more time you get time out, well, it doesn't matter if you are late for yoga, being consistent is more important in my opinion. Right now, she is mostly just  showing her butt around me and her father, but it's coming soon, sitters and we all have to be on the same page.  She is hitting her daddy sometimes, any ideas on that? 




She really likes to boogie.... she's teaching me moves!





Our swimming boston terrier. 




She is learning to get in the water more and more... my dad got her this awesome puddle jumper, it works great.


Pointing at wallace running. 

Now she has a suit to match mommy's



How could this be any sweeter!


She wanted to be just like her mom. With her blanket and everything. 


They were so happy to finally go swimming. 

My sweet adorable hubby!






1 comment:

  1. All very familiar stuff! We do not use timeouts or other punishment-based discipline. For something like hitting, we say in a very calm voice (even if it really hurt, because the reaction is part of it), "I can't let you hit." And restrain her arms if necessary. With yelling, I talk very quietly and say, "I understand you are frustrated, but you have to talk to me to tell me what you need." It works pretty well for us. If she keeps yelling then we don't respond. She is just trying to figure out what's acceptable behavior and what isn't.

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