After last weeks, 5 days of infusions, feet swollen and stepped on or stubbed, and today's treatment....and my general good luck of breaking steps at the hostel, running into things in my boat house (it's like a boat house) and having dogs and an almost 2 year old, well, I have more spots than a Lab, if I were a dog. If I were a dog.... I could go for a while on that one.
I continue to be sick at my stomach but it has gotten better over the weekend. Tomorrow, we today, now, I start the liquid clear diet. I have to drink that stuff at 12pm... it's not the taste, it is the amount. You'd think, I'd be cleaned out already. It's cruel to give people steroids and then not let them eat. Cruel I tell you. The latest was today I had blood in my urine at GA Cancer. My nurse was gone at Emory for the day and Dr. Khoury never got the message after he got out of surgery. I was told by the on call doc to drink a lot of fluids. What the hell does he think I have been doing for the last week... I'm been drinking them and still have to get IV fluids. **** I will tell Dr. Khoury about this and he will fix it. One lady, who might be a nurse, told me she would give Stacy my message in the morning.... hello... blood in urine... infection... BMT patient. Yes, that will be address too.
Ok, now I'm really starting to get hungry... I made this awesome smoothie yesterday..... spinach, strawberry, honey, bananas, and some milk, oh and flax seed.... it really was great. I had some amazing mellow mushroom pizza yesterday, or today... whatever.... that was left over from their lunch... it was yummy. Then after dinner we spontaneously went out to get Munchies.... a great yogurt place.
Anyone got any ideas for some good broth or other other clear things I can get tomorrow night so I don't kill someone Wed. morning?
Thanks so much for people that have already helped this week... Fay, Diane, Poppa.... next up cuz Andy, bro Daniel, and friends Kim and Andy, later in the week Fay. Then my parents are taking Evalyn to the beach with them.... if they don't change their mind again, an I will hopefully get to work on art for my booth and my upcoming art show in Sept. at a place in Watkinsville!!!
Please pray for the outcome of the colon scan. GVHD or the study drug causing it is not good.... just pray it goes away!!!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
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Love and prayers to you and your family. I think I've only commented once or twice to you (but I read everyone of your posts!) but it is funny that you mention Watkinsville because that is where my parents-in-law live. We visited them there last year for the first time since they moved there and it is a nice area. Just funny what a small world it is that we are all the way in California and we've been to that small town near you. Much love:)
ReplyDeleteThanks Stephanie, yea, it's a cute little town. It's almost closer to us than downtown Athens, so we like to go there and eat. Were you up during any of the fruit seasons? We have an amazing peach and strawberry place and this year we will have blue berries and blackberries at this one farm.... they should freeze you some!
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