Hello Everyone-
I'm just going to update you all and tell it like it is. No cartoons, or trying to be silly, But the effect of the liquid opium (yea, to stop the runs. I have officially been sick to my stomach for 10 days. I've had these 3-4 day bouts over the last six weeks, but this one may be the worse thing that has happened since the relapse back in Oct. I have been hooked up with an IV everyday last week, probably should have gone this weekend, and probably should get some today. I'm just trying to stay hydrated because: 1. I can't drive myself on this new med 2. I can't stand the thought of using 4 hours of my time when I'm so far behind.
Anyway, results, we don't know much except I have a ulser on my colon right now. I don't think that means the ulcer is causing my diarrhea, I think it just got so irritated. That's what I hope. Now, to what is causing it... Once again, the lab rat Heather shows up in the nic of time. They took 3 biopsies and they should be back Friday or Mon. They said it should show if it is GVHD, CMV virus, or one of the medications. Or they may not find anything at all.
Right now, I'm listening to my stomach churn, using my daughters ointment and sometimes the diaper itself, and trying to get the bathroom again. The picture of the ulcer is so high quality but I don't have the energy to that right now. Got to run, ha ha, got to run, get it? So that's all I have to say right now itself "OH Shit".
Have a better day,
Heather
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
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I am praying for u Heather! I'v been reading your blog since last year... Hope diarrhea will be gone soon. God is always watching you... He will never leave you alone. God bless you always! hugs....
ReplyDeleteWoo hoo, the poppy seed meds seems to work although they made me kinda of loopy. I have not gotten sick since yesterday afternoon and feel tired but that I'm going to be ok.
ReplyDeleteThanks,
Heather
Hope today is better honeyJohn is real sick both ends had to turn back going to Va. to visit his old aunts praying that you are better soon lol Aunt lisa
ReplyDeletegood grief!
ReplyDelete