WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, July 30, 2012

Medical Update: At Emory

(Guest blog by Jonathan Cape)

I was supposed to update Heather’s blog on Saturday. Whoops!!!

It’s been a crazy week. It’s been so crazy that Heather has not even updated her blog in over a week and a half. So I am writing to give you the lowdown.  This blog won’t be creative, witty, or even clever in any way… just purely informative…

Heather is in the hospital.  She went to Athens Regional on Monday, and then they took her to Emory on Tuesday.

Why she is in the hospital:
    1. Her feet are so swollen that one of them is leaking fluid.  There are 2 spots on one of her feet that are seeping fluid just as if they were a dripping faucet. It’s one of the craziest thigns I’ve ever seen.
    2. She is in pain.  It sounds like she isn’t in as much pain as she was when she went in… but the pain has been pretty extreme. And the pain is in all types of places.
    3. Her neck is messed up.  She is having a tough time keeping her head up.  There is something wrong with the C4 and C5 vertebrae.  The docs will be fitting her for a neck brace… and a surgery may be required at some point.
    4. Stomach issues.  Her stomach issues are still going on. There has been no relief for that.

So, all in all, it's been a tough week.  I was even out of town for business when Heather got admitted... but Heather's family was awesome and took care of her and Evalyn so well.  I appreciate all that they have done and are still doing.

-Jonathan
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1 comment:

  1. AnonymousAugust 6, 2012 at 10:36 AM

    Heather, you don't know me...but I feel as if I know you. Have been following your blog for quite some time.
    I just want you to know I am praying for you and your family.
    love to you....

    ReplyDelete

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