Figure I could bring you up to speed my last few minutes of solitude here at the monastery. Now they are saying that all my problems comes down to GVHD.... the eyes, we knew, the skin, the stomach was the meds but is now also GVHD, and the swelling in my feet, he says that is GVHD too. My stomach has gotten somewhat better the last few days not sure if it is the medication ( the new oral chemo, not the study drug) or if just being around so much prayer the last few days, or both. Either way, I have not had diarrhea, nor had to wear a diaper. I have had to run like hell to the bathroom to pee about 6 times per night. My feet were so swollen on Friday that I could barely walk. You know the wrinkles on the back of you ankle..... well mine had none, the skin looked like it was going to bust. I've had some stomach pain that has kept me from doing some the art I wanted to do here, but I actually was able to concentrate enough to read...... out of a book. I have not had the concentration to do that. Of course I have to now buy or check these books, so I can finish reading them. Hey maybe I can finish reading Middle March which is what I was reading when I relapsed back in Oct. They finally found some emergency medication that they hope will work when my bone pain attacks so bad I'm crying and shaking. I don't understand why some people do not get that I don't want to be on a "time release" pain medication everyday when the really bad pain only happens every so often. Some people are in that much pain everyday, and I do have pain every day, but I don't think the costs out way the benefits at this point. Plus, I can't sleep on pain pills, they do the opposite to me. Had some other medication changes and I'm starting to look like a drug addict if you looked in my case.
This week I hope to start back to my yoga class, maybe a zumba, hope to find baby sitters, somehow get out of going to Emory for one week, go to the children museum with my cousin, sell some items, get the website or something going for online orders, and get more people to sign up for Be the Match run. You know I have had only 2 people sign up so far... my dear cuz Shanna and her daughter. Come on folks, I know it's not till Oct but it encourages others!
I had someone volunteer for yard work out of the blue and someone is setting up a "food train" with a meal at least once a week. How wonderful as it will take a while to recover. Dr. K said that the medication takes 4-6 weeks. I'm have very sharp stabing pains, which he is says is gas or the ulsers. Either way, they hurt bad.
Today the Catholic Church celebrates the birthday of John the Baptist. I think of how much he suffered in order to fulfill his destiny to proceed the Lord. I hope and pray that all this pain continues to bring me closer to him, to give him glory in bad and good times, to reach out to others that need me , to provoke change where needed, and more my own sanctification. I must be one stubborn SOB.