WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, July 30, 2012

Medical Update: At Emory

(Guest blog by Jonathan Cape)

I was supposed to update Heather’s blog on Saturday. Whoops!!!

It’s been a crazy week. It’s been so crazy that Heather has not even updated her blog in over a week and a half. So I am writing to give you the lowdown.  This blog won’t be creative, witty, or even clever in any way… just purely informative…

Heather is in the hospital.  She went to Athens Regional on Monday, and then they took her to Emory on Tuesday.

Why she is in the hospital:
    1. Her feet are so swollen that one of them is leaking fluid.  There are 2 spots on one of her feet that are seeping fluid just as if they were a dripping faucet. It’s one of the craziest thigns I’ve ever seen.
    2. She is in pain.  It sounds like she isn’t in as much pain as she was when she went in… but the pain has been pretty extreme. And the pain is in all types of places.
    3. Her neck is messed up.  She is having a tough time keeping her head up.  There is something wrong with the C4 and C5 vertebrae.  The docs will be fitting her for a neck brace… and a surgery may be required at some point.
    4. Stomach issues.  Her stomach issues are still going on. There has been no relief for that.

So, all in all, it's been a tough week.  I was even out of town for business when Heather got admitted... but Heather's family was awesome and took care of her and Evalyn so well.  I appreciate all that they have done and are still doing.

-Jonathan

Thursday, July 19, 2012

Medical and Mental health 7-19

I just got finish reading Our Daily Bread. I feel that it relates to me because lately I have been putting on this front that says I'm ok. Well, I'm not ok. My sense of motherhood is not ok, my yard, my feet, oh Lord are not ok, the fact that I'm wearing adult diapers an can't make it to the bathroom is not not ok, my uncle Frank dying when the treatments, not ok, My Grandma Bobbie being 5 doors down from where her son was is so sad to me. My body hurting to the point of having to take pain medication is not ok. My husbands job sending him out of state for a week, we just found this out yesterday, is not ok. I can't even take care of myself. My booth loosing money last month, way not ok. I hope to have the website up and hopefully talk my boss into letting work via home or internet to promote our store.... maybe ok.

Not you have not thought about it before . "Maybe I'm just a burden." or lets just shoot it straight " I don't want to live through this pain anymore. " Yes, jen, I' m being a Negitive Nancy. I have so much on my "plenty plate" I can't keep up. I can't remember to take all my meds, I've lost some medical items somewhere on my trips back and forth. Now, I can't remember to take all my meds, get my daughter up to her free dance lessons, make myself pay 40 dollars for extra follow ups.

Wearing one style of shoes for the last few months, although they are cute are getting harder and harder. Finding clothes that fit me, well, that's really depressing.

I know all this sounds awful, but it is the truth. I'm so depressed and have never wanted to not get out of my bed, except I may be pooping in it.

Happier news and pics ahead....

FYI, no interventions please.
Love,
Heather

Wednesday, July 18, 2012

Fun summer time pic blogs

                                                                    SUMMER FUN
Near the first of June and my sis and bro came out to hang out and watched one of my frrst open mic nights.





What is that Mommy?


Fun in the sun at my parents house.





How sweet!


Evalyn loves to help and is helping put lotion on my feet. 



She had to get dressed up to watch Annie. 

The Monestary of the Holy Spirit

We went to the Monestary in Conyers for  a couple of nights, we enjoyed the services and the awesome food. 




Daniel did a great job with learning to drive a stick! 




My 32nd Birthday: We went out to eat and then I played at open mic night.  






Verna and Vic... Evalyn loves when Verna babysits her. 


Evalyn's favorite activity was the painting. 







4th of July 

My helpers did a great classic job with the gold carts this year. Thanks for all your help with Evalyn too! 



I can't beleive how well Evalyn did with the fireworks. We watched the end of Annie  lot and really talked to her about how loud it would be. She was clapping and laughing. 


Two giant cat fish.... I just got one little brim. 

Monday, July 16, 2012

June/July videos

video


video

She really loves to recline and fall asleep;.


video

she would jump up and down and say " I did it!)



Monday, July 9, 2012

Medical Update: Prayers needed for Family

Hello Everyone... it's been a hard week. Yea, I know it's only Monday but my weeks turn into hours and hours into months and well, I'm just lucky to take the right medication at the right time of day. As many of you know, my uncle Frank is in ICU at Cartersville medical center. I grew up right next to him for many years. I thank him for my hippy side, love of records, and weird vintage things no one wants. It doesn't look like he is going to make it just a couple more days. My grandmother is also in the same hospital just a few rooms down. Last thing they need is another cancer patent and a 2 year old . Most of all, Please pray for my Dad, he has a daughter, brother, and mother that is either sick or dying, or both. He is being so strong about it all.

I'm doing ok but really wiped myself out working so long at the store on Sat.  I'm sick at my stomach a lot and the last two days have been a blur and I have barely been able to get out of bed. I have not been back to Emory due to the fact that I don't want to pay a copay for them to tell me there is nothing they can do for me right now. They said a couple of weeks would be fine. I couldn't go to a cook out at Sean and Mirka because I was so out of it. I couldn't get up and go to Yoga or take Evalyn to her dance class today or go do open mic. Oh well. I did eat a little but nothing serious. I found this butternut squash soup at this Argentina place I seem to be able to tolerate. It's not on the cheap side like the onion soup. Oh by the way, never never eat onion soup at 5 am, I thought I was going to have a heart attack. See, I have to get so many hours in a month or the price of my booth goes up. I have sold some but still need to work on more paintings, wreaths and Jewelry. Summer is not the best time there because so many people are out of town and it's so hot. One good thing is that it makes the fluid in my legs and feet less because I sweat it out! I wonderful person named Brandon started a Meal Train for us and we have been getting people from strangers..... it's wonderful and the food has been great. This is such a good time for this to happen. Please if you can help someone in your area good Meal Train, it's really cool.

I will be posting some great photo's and video's soon. My little girls 2nd birthday is coming up this Monday. We have a preschool party planned and a big family party. She is the joy of our life.... this week is about life and death for our family, pray for us to see the beauty in both.

FYI- Evalyn knows how to go get her mommy more toilet paper now.

Love,
Heather



Sunday, July 1, 2012

32nd Birthday Party


32 already or 32 and going 70?

My birthday was last Monday. I thought it was Tuesday, Jonathan thought it was Sunday. A few of us got
 together and got some pizza and then listened to open mic, where I played two songs. One was the song " God Danced the day your were born."


I came into the world with eyes open and waving "hello!"


About to play at open mic night. 

Evalyn had a great time with Ella and Hayden. 

Vic and Verna came to listen at Hendershots.




Chris and Jonathan..... didn't get  pic of the Gamboa's or of Sarah and her brother.  My brother Daniel and  sister Anna also came!