WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, June 25, 2012

Day by Day items

Some more Day by Day products. \ I can go ahead and start taking orders from those I know and trust. We can discuss what you would like via email or phone, there are a lot of personalized choices but you can also just buy the ones you see the pics of. I will figure out how to order online soon. The jewelry is not expensive, nor the folk wood pieces, and recycled earring holders. I'll have some more pics up soon of other things also, more wreaths (will also custom make), as well as more jewelry holders. Please give my products a chance, pretty much everything will be going to medical and medication bills.


Gotta get a better pic, but these are personalized with my daughters picture. 

Small earring holder with a box for earrings that are not hook. Clip ons and be put on  the side..... can also personalize one of these for the little girl in your life! 

My step mother Fay made these succulant planters, so easy to take care of  and I think the candle holder stand is awesome with it but it is sold separably. 

Air Plants, I found out about these at the monestary , they do not  need any soil and I found some of the cutest ideas for the terriums! Coming soon. These can also be shipped. 


Just some of the jewelry I have made out of mostly recycled, sometimes all, material. 



Not the best pic but you get the idea, how cute is this little plant that I can tough and hold becaue there is no soil. All you have to do is mist them 3 to 4 times a week and soak them once a month

I made this bracelet for Evalyn, but then decided to turn it into a necklace.  She loves the photos  on there.

There are matching earrings to go with this bracelet. 

Bottle caps on left side, made from recycled wood. 

Personalized magnets or chip cllips I made for my Dad for father's Day. 

Please email me at heather.cape@yahoo.com if you are interested in purchasing and/or personalizing items. Other pictures of items under the older posts under the labels to the right, Day by Day.




Air plants seem to be hard to take pictures of  sometimes. This one is make from a  used light bulb, sand, shells and coiled wire. I love personalizing them with small momentous. For example what are you doing with all those flatted pennies from vacation, or that broken necklace or watch piece of your grandfathers that is just sitting on the floor. 

Some of the air plants hang, other I  can use glass with holes in it, old bottles, wine corks, small jars. 



This is an example of a changable. The Georgia magnet on this bow and be switched to other magnets as you choose. I also do this with necklaces. 

Sunday, June 24, 2012

Medical Update 6/24

               Figure I could bring you up to speed my last few minutes of solitude here at the monastery. Now they are saying that all my problems comes down to GVHD.... the eyes, we knew, the skin, the stomach was the meds but is now also GVHD, and the swelling in my feet, he says that is GVHD too. My stomach has gotten somewhat better the last few days not sure if it is the medication ( the new oral chemo, not the study drug) or if just being around so much prayer the last few days, or both. Either way, I have not had diarrhea, nor had to wear a diaper. I have had to run like hell to the bathroom to pee about 6 times per night. My feet were so swollen on Friday that I could barely walk. You know the wrinkles on the back of you ankle..... well mine had none, the skin looked like it was going to bust. I've had some stomach pain that has kept me from doing some the art I wanted to do here, but I actually was able to concentrate enough to read...... out of a book. I have not had the concentration to do that. Of course I have to now buy or check these books, so I can finish reading them. Hey maybe I can finish reading Middle March which is what I was reading when I relapsed back in Oct. They finally found some emergency medication that they hope will work when my bone pain attacks so bad I'm crying and shaking. I don't understand why some people do not get that I don't want to be on a "time release" pain medication everyday when the really bad pain only happens every so often. Some  people are in that much pain everyday, and I do have pain every day, but I don't think the costs out way the benefits at this point. Plus, I can't sleep on pain pills, they do the opposite to me. Had some other medication changes and I'm starting to look like a drug addict if you looked in my case.

                This week I hope to start back to my yoga class, maybe a zumba, hope to find baby sitters,  somehow get out of going to Emory for one week, go to the children museum with my cousin, sell some items, get the website or something going for online orders, and get more people to sign up for Be the Match run. You know I have had only 2 people sign up so far... my dear cuz Shanna and her daughter. Come on folks, I know it's not till Oct but it encourages others!

                I had someone volunteer for yard work out of the blue and someone is setting up a "food train" with a meal at least once a week. How wonderful as it will take a while to recover. Dr. K said that the medication takes 4-6 weeks. I'm have very sharp stabing pains, which he is says is gas or the ulsers. Either way, they hurt bad.
           
               Today the Catholic Church celebrates the birthday of John the Baptist. I think of how much he suffered in order to fulfill his destiny to proceed the Lord. I hope and pray that all this pain continues to bring me closer to him, to give him glory in bad and good times, to reach out to others that need me , to provoke change where needed, and more my own sanctification. I must be one stubborn SOB.

Tuesday, June 19, 2012

Still Kicking but can't Feel my Feet

This is mostly complaining so you can stop reading now. Go ahead, I don't care.
Well, I guess it has been a while. Not much has changed medical wise and Evalyn has been a handful with her Mommy to say the least. But she is learning and I'm being consistent while at the same time letting her sleep an extra hour if I can just have some silence. It's been very hard for me to get on the computer. I'm having a lot of issues with my eyes with the GVHD and I'm so exhausted from being sick to my stomach and getting up in the middle of the night to pee with this water pill that I can just fall asleep mid type or read. Concentration is so hard. Last week. I just forgot what day it was and we didn't go to small group. I think I had to go to Emory on Tues (with my bro and sis, when we should have having fun), so that got me confused. I'm frustrated that I can't keep up with everything I need to do for myself. Give myself insulin today or do my eye stuff? nope  Poop my pants, with a phone book on, while running errands and trying to make a little money? Yep  Evalyn sure is sweet, she tries to help me so much. From unloading the car, putting on my shoes, kissing my boo boos, putting lotion on me the best she can, and just being a sweet girl, besides the yelling no in my face every 5 sec. That's ok, I always win, and she says yes unless it was a choice then she just gets in trouble for how she is speaking. She is learning so much so fast it blows my mind.


We have so much going on in our family right now. My poor Dad had a daughter, brother, and mother all with cancer and getting treatment. I have a cuz that is having some health issues and another uncle who just had back surgery. Jennifer just moved to California, which I'm so proud of and will be flying out soon if I have to wear a space suit!!!, Daniel is getting ready to make some big decisions and I feel in my heart of hearts will take him from GA for a while, I just started a new business with my art and booth lots of fun but lots of work and I Owe people money from just being broke and starting a business (hey God told me too), Jonathan's getting laid off with the potential for a couple more jobs that we know nothing about, I can't exercise due to the horror of thinking I will shit my pants while doing a zumba move, we can't find the medication that I need for when I get unbearable pain in the middle of the night and can't afford to go to the ER. Jen and Dan had to deal with that pain last week and had to take me to Emory in the morning and Daniel took me home. Thanks Dan! They want me on some pain medication everyday for something that happens every once in a while and I won't do it. I can't sleep on pain meds, heck I'm not sleeping anyway. I did sleep last night because I took something and I almost wet the bed. No kidding. My feet, ohhhh my poor poor piggy feet. I will force myself     to post a pick of them tomorrow. Please no suggestions, nothing works, it's the heat and the steroids. I suppose if I sat all day they would go down some, but I can't do it. Babysitters have been difficult to find and keep right now, but I'm glad to be at home when I can when the treat of the hospital is always looming.


Ummm .... something positive. I sang two songs at an open mic night last Monday night when my bro and sis where in town and we had a yummy dinner at the Grit. I'm planning on trying to sing at least 2x per month and build up to a 1/2 hour set. Jonathan had a great guy trip this past weekend which he deserves even more than that with all he has to deal with. My Pop seems to be feeling better and Evalyn finally said Granny.... clear as a bell. My cuz and I have plans to take the kids to the children's museum next Thursday and I sure hope it works out. I continue to meet people that I seem to be able to help and inspire for Be the Match, the Lord, and just that I'm living in general. Meet a women today that is going back to school for Behavioral Sciences, which was on, and maybe still is one day, for behavior sciences. I was able to discuss services for her son that has autism and talked to her about how God showed me to go and do my art at this point instead. I'm still working on getting people to sign up for the be the match run and raise money. I have a lot of exciting art ideas that are just pouring out of me that I can't keep up. Daniel and I are getting to go to the Monastery in Conyers basically for free because I called about my situation and they had two spots available. Please pray that this renews my strength and provides some healing and Daniel finds what he is looking for under God's direction. If I live the next 6 days, I will have made it to 32... going on 70. People ask what I want something. Lows, roof has to be fixed, hobby lobby, kroger, gas, Inokos, i tunes, vacuum, dusting, babysitting, cooking, and another year to be with my loved ones. Mostly, prayers. Liquor is good too. A good Scotch. I have way more in common with them right now than people my own age. Although, I am starting to meet with other moms and kids and that has been fun. I'll try to post some pics soon of our last play date. It was 3 boys and one girl this time! 


I have to go to Emory tomorrow... Just pray that I'm in and out without any changes this week and they just leave me alone for a little while. I'm requesting a week off, or demanding. Just one week where I don't have to go there and do something else on hump day.One less co pay, parking ticket, and gas.
 I need onion soup.  

Monday, June 11, 2012

Evalyn's says "I'm not a baby.....


Evalyn is doing great! She is learning so much I can't keep up with all the words. We are working on please, thank you, help, not screaming, or repeating things 20 times. She seems like she has some allergies and I hope that it is not a cold. She is so sweet and funny and makes up songs and  dances. Well, we are well into the "terrible two's" It doesn't seem to be terrible to her but to I think although it's hard for everyone, parents that are dealing with money and medical issues, it makes it even harder to be consistent. She knows time out, but if you say, if you do that one more time you get time out, well, it doesn't matter if you are late for yoga, being consistent is more important in my opinion. Right now, she is mostly just  showing her butt around me and her father, but it's coming soon, sitters and we all have to be on the same page.  She is hitting her daddy sometimes, any ideas on that? 




video
She really likes to boogie.... she's teaching me moves!



video

Our swimming boston terrier. 


video

She is learning to get in the water more and more... my dad got her this awesome puddle jumper, it works great.


Pointing at wallace running. 

Now she has a suit to match mommy's



How could this be any sweeter!


She wanted to be just like her mom. With her blanket and everything. 


They were so happy to finally go swimming. 

My sweet adorable hubby!






The art inside me!!!

Finailly found a way to display by small collections of feathers and coins!

I'm making changable shadow boxes out of old drawers.



Owl earrings!!!


Hi, everyone. If you read my blog about finding my unfinished painting in a thrift store, you know that it was a clear sign that God wanted me to choose art instead of going back to school or trying to get a job but with the state. As my Pop said, I don't really need that stress right now but I need something that doesn't involve cancer or trying to take care of my family when i can barely take  care of myself.
I'm just now starting to get some inventory together so I don't have very much and I'm very slow at making things but you should have heard my first guitar chord or seen my first crocet piece. I also found someone that lives very close to give me free sewing lessons for free. She doesn't have any kids, just works outside the home and also make jewelry. I liked her a lot, maybe she will like Evalyn too!

So, my thing is going to be mostly making items out recycles wood, metel, bottle caps, anything I can find. That's where I need your help, if you live pretty close but even in c ville or near Atl, I'm there a lot, I could find a way to pic it up. So before you send stuff to good will, besides clothes, think about me. Here are some of the items I am looking for.... any bottle caps, including plastic ones from juice, gatorade, etc, frames with or without glass, old medal pieces even with rust with or without holes, if you go to the beach, I need drift wood and palm bark that has fallen off, fabric scraps, trinkets for jewelry, small old end tables, that one earring you keep holding on to, old wreaths, unfinished projects, old drawers for shadow boxes,old  beads that broke, or your welcome to ask also! I will be willing to purchase some of this stuff.

I've had a lot of interest and trying to figure our the best way for people to order online. Right now, I'm just going to let people order that I know to try out the products wear and tear.



The silver Jewelry holder, magnet bottle caps are "diva" style.  Also a place to hang neclaces, bows, etc.

One of my random wood/ bottle cap decorations for the kitchen. 


Stephanie Hunnicutt is one of my featured artist and has a few things in my booth. She makes the cutest things! I Love the match box car holder. 

Some of my featured artist, Lily, work from their place "Sailor Studios".  They make the most beautiful jewelry.

Evalyn was helping mom.... or so she thought. 

Feather earrings that I made. They have the word Love hanging from both sides, need  a better  pic.



More random work art.  Forgot everything it says because it's at the booth, but one says  something about  " our house is clean enough and dirty enough to have been lived it.   The other one says something about if it is not something you need or find precious then get rid of it. 

My Chloe earrings, the other one is wallace of course..... great for girts!. 

My Jewlry and Jewelry holder set up at the booth so far.


Cute " Be yourself earrings"

The Hello Kitty Jewelry holder, even has magnetic box to put  things that don't hang. These can be purchaed separtley or as a set.

This says cabin fever and there is a place to put your own fishing or camping picture 

Life magizine from 40's on recycled wood. 

"Do not wash or tumble dry means I wil never wash this"

One of my favorites.... "stop me before I volunteer again. 


Music notes earrings with hanging birds. Coca Cola on the back.

My Evalyn rose earrings turned out great! 

Sprite earrings with pearls. 

New baby pins.
They Hydrandria feather wreath. 
The Horseshoe crab/ shell wreath. 

I also paint acrylic paintings but I forgot to take some pics of those.... maybe next time.

Thanks for looking. Feel free to email me at heather.cape@yahoo.com or call at 404-307-5000 if you are interested in making a purchase that you see are talk about personalizing. 

video
pitching a fit when I stopped by the booth to pick something up..... she didn't agree with my prices.