Hi everyone!
I'm not really sure where to begin and it will probably take me a couple of days to write this since I have some serious short term memory issues and a full time job of a medical coordinator/ advocate for myself. Don't forget the 2.5 year old, although she is probably the only reason I am still on this earth, that girl of min is fast, strong, and way to smart for her own good.
A quick medical update.... guess what..... they don't know. That's right, they don't know. They don't know what these cysts are that are popping up under my skin. They don't know if a hip replacement is going to work since my bone are falling apart, so they don't know if I will need other surguries or be lame forever. They don't know if it would be best to take all my teeth at one time or risk getting something call OMJ if my teeth continue to chip away. It's when your on osteoporosis medication and you have dental work done and can cause problems in your jaw not to mention deformities. They don't know why my body is not adsorbing Vit D and in my spine it is the lowest the specialist in Atlanta has every seen. I guess the good thing is that they are not afraid to say "i don't know.
OK so I just stopped writing this post like a week ago, so if I just change tone, I'm not a schizo, no offense if you are....., at least not yet. It could be on the side effects list of the next med they decide to try me out on a new med. Of course, then I will stop taking all of them. That will show 'em.
Last Friday, I made a hard decision to have all my teeth removed in to eliminate the risk of having dental work later on which according to how bad they were, genetics, treatment, and research, there was a pretty good chance the above mentioned would happen to me. They were literal falling apart and to save them would have cost more money and more pain. So I'm recovering and they said it hurts worse the first day but I'm on the third. I'm awaiting tons of appointments having to with pain to vitimin D shots. You name it, I've had it or got or the stats say I will. I just seem to keep getting lucky enough to be in the 1 percent.
On a good note, I'm also lucky enough to know true love and that is what my sweet husband Jonathan has given me. Toothless, in pain, can't walk, can barely read, can't drive, etc etc. He loves me anyway. The things this man does for me you would not believe. Maybe I'm in the 1 percent there too. They can't say I don't know all they want. But I know , I love you, Jonathan Cape.
