WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, November 29, 2010

Nov. 29th Back at Emory 2nd admission

Hello all,
                 My neighbor Mr. Frank brought me here today! He cooked bear stew a few days ago and it was so good.  It isn't so bad coming back, 5 days compared to 22, ha! I have some business to conduct, you know.  The staff know me and liked that I had on my Goldie Hawn wig and red lips. I kind of missed these people, well we did spend a lot of time together.  I got a great room, which was a surprise because at Admissions they said one room, but when I got up his Mrs. Pat said they gave me a front room. Sweet.  I think one of my favorite nurses hooked me up.
               Once I finally got the room, the lady asked me if I was on the fast track but I didn’t get the memo, I had people in and out for about 2.5 hours. I just wanted to put my belongings away. Maybe next time I could say, “ Can I have 30 min PLEASE. “ I put some pics, cards, and a few Christmas decorations up. My pole is decorated with lights and garland. I have Christmas lights in the room right now, but that have to get them approved by the men that never come when something doesn’t work. I might bribe them with candy or my cousins BBQ.  The light is so nice and calming. I brought a little lamp but not a light bulb for it. I also saw the lady from the family I asked you to pray for… she is doing great with her treatment.
Click…. Click… Click                I’m hooked up now to the pump.  Now vital signs again.
             I will have 5 days of chemo treatment.  I will have IV chemo and 2 LP’s where they put it in my spine.  Oh, and the steroids are IV this time not just pills, holy crap. Who knows what great idea I could come up with on this stuff.  I told them they better give me something, or I may try to run both Emory hospitals from this room. The prayer request that I have with this treatment is that I will not get mouth sores which I’m told is the main that that happens with this round. Mouth sores, ouch.  Also, I would really like to be able to eat all this good food that I brought.
           Off to get an xray due to some pain in my chest…. Don’t worry, if you sneeze they call a code around here.
          Goodness, they won’t leave me alone. Now they want me to pee in something else.  I guess I’m not really on vacation am I?
 I do get room service in the morning.
Click… Click    I hope this helps my rhythm.

My sis came to visit over the weekend and we went on a walk!

1 comment:

  1. Evalyn and I prayed for you tonight. And she said she would talk to the angels about her momma tonight too.

    I love ya.

    ReplyDelete