**Medical MJ** Pretty uneventful today. I discussed with the doc about what comes after if I don't find a match... I do have a great chance though. I just want to know, you know, wouldn't you? He said that if it came down to it we would try a half match as a last resort. He said that it is not as successful but better than nothing. They don't even do them here. He said the wouldn't attempt it with someone older... only young people. We talked about the sinus and migraine headaches. He said that he my order some nose spray or something. I think I'm having both. My head hurt again today and after 2 hours I finally took half of the headache medication. Makes me a little loopy for a little bit, but at least my head didn't hurt. I was wearing sunglasses again this morning because it hurt so bad. God, I wish I could just have an ibuprofen! My white count is .3... that 300, it was up to 93,000 before I came to Emory. So the chemo is killing all the bad off... and they are now going to give my body and chance to see if I can make some healthy white blood cells.... Let's hope so!
**TODAY** What a wonderful and tiring day! I was able to see my sweet husband today. His birthday is tomorrow and we went to get ice cream on campus.... yes I took off the mask to eat it.... then we walked around the courtyard part of campus. It was so beautiful.... the leaves falling, the marble buildings, the big trees, children and dogs playing, cheering in the distance from a soccer game, the beautiful weather, and the best husband a gal can ask for. I competed my first ever web cam video, a song, Eight Days a Week, for his birthday present. You can check it out at this link, at you tube, I think you might have to copy and paste it into the address bar, or even write it down and type it in... www.youtube.com/watch?v=zA6pMQlxYbo ...... this blog site is not really link friendly. Anyway, we had a great time. Jonathan watched and learned how to do my dressing when we get home and flush the line. You should have seen his face, it was kinda funny. Don't worry, he'll have to do it for the nurses before we leave.
I was able to see Evalyn today. It was kinda surreal. I have not been around her a lot lately. It seemed like she remembered me but that she was studying me more than being happy to see me. I tried not to take it too personal and didn't even cry.... I cried before :). She is getting so big and pretty. I'll post some new pics of her soon. My mom had a dress on her, tights, and shoes.... ha ha.... we don't really do that much at home. Dresses ride up, tights get poop on them, and shoes.... we'll who wants to wear shoes. It doesn't matter, she looked pretty and I know the Grandma had a great time dressing her up! We got some good pics. The hospital has an amazing Christmas tree up right now.... don't get me started.... I must say it was covered with huge toys and ornaments. Evalyn and my Dad really liked it! Jonathan took Evalyn home today and we have 4 different people coming this week to help watch her... that's so great!
Then I was able to visit with my Mom and Dad. My Mom helped me dye my hair..... it's Atomic Turquoise..... blue ;) They didn't have the purple. Everyone is getting a kick out of it and calling me a rock star, maybe that is why I'm listening to Jimmy right now. :) We had a great time on our visit and laughed a lot!
** The Lord** This should have been first......I had a visit from another patients mother today. She wrote in the guest book. She was very encouraging and spoke about the lord to me and said the first name in the bible that God is called, is God the healer!! Sean sent me awesome verses today. I'm going to hang them up in my room.... I wish I had a printer here! Check out Sean's post in the guest book to read the verses, they are very inspiring. I do feel that God is and will use this situation for good. It is already happening. I'm thankful to be apart of it! Thank you Lord!
**TODAY** What a wonderful and tiring day! I was able to see my sweet husband today. His birthday is tomorrow and we went to get ice cream on campus.... yes I took off the mask to eat it.... then we walked around the courtyard part of campus. It was so beautiful.... the leaves falling, the marble buildings, the big trees, children and dogs playing, cheering in the distance from a soccer game, the beautiful weather, and the best husband a gal can ask for. I competed my first ever web cam video, a song, Eight Days a Week, for his birthday present. You can check it out at this link, at you tube, I think you might have to copy and paste it into the address bar, or even write it down and type it in... www.youtube.com/watch?v=zA6pMQlxYbo ...... this blog site is not really link friendly. Anyway, we had a great time. Jonathan watched and learned how to do my dressing when we get home and flush the line. You should have seen his face, it was kinda funny. Don't worry, he'll have to do it for the nurses before we leave.
I was able to see Evalyn today. It was kinda surreal. I have not been around her a lot lately. It seemed like she remembered me but that she was studying me more than being happy to see me. I tried not to take it too personal and didn't even cry.... I cried before :). She is getting so big and pretty. I'll post some new pics of her soon. My mom had a dress on her, tights, and shoes.... ha ha.... we don't really do that much at home. Dresses ride up, tights get poop on them, and shoes.... we'll who wants to wear shoes. It doesn't matter, she looked pretty and I know the Grandma had a great time dressing her up! We got some good pics. The hospital has an amazing Christmas tree up right now.... don't get me started.... I must say it was covered with huge toys and ornaments. Evalyn and my Dad really liked it! Jonathan took Evalyn home today and we have 4 different people coming this week to help watch her... that's so great!
Then I was able to visit with my Mom and Dad. My Mom helped me dye my hair..... it's Atomic Turquoise..... blue ;) They didn't have the purple. Everyone is getting a kick out of it and calling me a rock star, maybe that is why I'm listening to Jimmy right now. :) We had a great time on our visit and laughed a lot!
** The Lord** This should have been first......I had a visit from another patients mother today. She wrote in the guest book. She was very encouraging and spoke about the lord to me and said the first name in the bible that God is called, is God the healer!! Sean sent me awesome verses today. I'm going to hang them up in my room.... I wish I had a printer here! Check out Sean's post in the guest book to read the verses, they are very inspiring. I do feel that God is and will use this situation for good. It is already happening. I'm thankful to be apart of it! Thank you Lord!
testing........heather
ReplyDeleteHeather,
ReplyDeleteAs I was reading God’s Word this morning, I read the verses below from Philippians. As you have been lately, you were uppermost in my mind and I had this clarity of thought that struck me; you had penned most, if not all of these words. Some of it may not make sense, but I think most is applicable. These are words you could have written and truly meant as you wrote them. (Instead of “palace guard”, you could replace that with “hospital staff’.)
After following along with you in your “ramblings”, J with what you have been writing and in talking with you, I see you being used by the Lord in ways that none of us could imagine. I see a willingness to be used by the Lord and I am humbled that I am allowed to be a part of your life and what the Lord is doing and going to do with and through you!
Mirka and I love you very much!
Philippians 1:12-20
12 Now I want you to know, brothers and sisters, that what has happened to me has actually served to advance the gospel. 13 As a result, it has become clear throughout the whole palace guard and to everyone else that I am in chains for Christ. 14 And because of my chains, most of the brothers and sisters have become confident in the Lord and dare all the more to proclaim the gospel without fear.
15 It is true that some preach Christ out of envy and rivalry, but others out of goodwill.16 The latter do so out of love, knowing that I am put here for the defense of the gospel. 17 The former preach Christ out of selfish ambition, not sincerely, supposing that they can stir up trouble for me while I am in chains. 18 But what does it matter? The important thing is that in every way, whether from false motives or true, Christ is preached. And because of this I rejoice.
Yes, and I will continue to rejoice, 19 for I know that through your prayers and God’s provision of the Spirit of Jesus Christ what has happened to me will turn out for my deliverance. 20 I eagerly expect and hope that I will in no way be ashamed, but will have sufficient courage so that now as always Christ will be exalted in my body, whether by life or by death.
sean zuniga
Heather,
ReplyDeleteThank you for sending me the link to your Caringbridge site. You write so beautifully ! I enjoyed my visit with you this morning, and you seem to be doing so well. I pray that you enjoyed your time with your baby and that your spirits were lifted, How blessesd you are to have such a caring family and friends, but most of all, al loving God. Remember He is Jehovah-Rapha- the God who heals!
Love and continuous prayers,
Susan
Susan Hill
I love the hair!
ReplyDeleteEvalyn will always know that you are mommy, but she is too little right now to remember to get upset and that is a good thing. I am proud that you didn't cry. I am such a crier, always have been. I don't dress Emilie up like that either for the reasons you mention. She has worn tights all of once! I tend to do onesies plus pants or legwarmers now that it's cooler. Even shirts ride up!