Hey everyone....
Nope, I have not fallen off the face of the earth. It comes down to two things.... time and energy. I don't have enough energy to do what I need and want to do and then I have to lay down, which saps my time. I've been super tired now days. I keep hoping that my energy level will go up, but I'm on week 2 after chemo and it hasn't yet. It's better, but not enough to go around. I has some energy last Friday, but it was the blood. Then... it thinned out. The last week, I have been trying to get back to work, working from home, and Jonathan is trying to pass his exams. Evalyn has had a rough week, apparently, she is not ready for sweet potatoes and seems to be fussy from teething.
In the long run, it doesn't matter if the Christmas pictures ever get out, if I finish a hat for someone as a present, if the floor is vacuumed, or if dinner tastes good. It matters that I take care of my little girl, get my work done, take my meds, and love my husband.... and snuggle with my puppies of course. Oh, and live :)
I'm a debbie downer today, as my sister would say, but don't pray for me to have an attitude adjustment because who knows what would happen, I am stubborn, remember? Pray that I have more energy and that Jonathan passes his exams!
Freezing,
Heather
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Tuesday, December 14, 2010
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Well baby, you are exactly right. The only thing in this world that matters is spending time with the ones you love. I also can not imagine you not having down days. Someone told me at work that I was so positive considering all I was going through. I was shocked. I feel some days like a deer standing in the headlights of a car. Guess I should have been an actress instead of a nurse. I hate to hear you are tired and even more I hate that I can't fix this for you. But I know you are going to be okay. I dreamed the other night, that your hair came back red and curly. Isn't that funny. Anyway, I am so grateful for you, Jonanthan, and Evalyn and I love all of you.
ReplyDeleteYou are allowed down days, tired days. And you are right, like I have said before -- things like housework don't matter in the end. Christmas presents don't matter, the people that you love know you love them. Spending time with your family and doing what you have to do...that's it. And taking care of yourself. And keeping warm!
ReplyDeleteDid the sweet potatoes mess up Evalyn's tummy? I had to back off for a little while with Emilie at first with the solids and just take it easy. But it's OK, she'll adjust in her own time when she is ready.