WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, January 24, 2011

Jan 24th Time to play and be productive!





         Hello!
               We went to Cartersville this past weekend for a night for the first time since Oct! Evalyn had a good time playing with puppies, Grandpa, getting a bath, and meeting her 2nd cousin, Liam. Mom made great cookies and pork loin, while Jonathan, Corynne, and I battled for 5 stars are the Michael Jackson Wii game. Wallace was too upset because we left Chloe in Athens. We went to see Nanny, she is doing a lot better, and our friend Tammy stopped by to see us. On the way to Cartersville, we stopped by and saw Robbie and Christy, Jonathan's brother, and they made us some yummy breakfast. We were blessed in the last few days to receive $70 between different people! It's going to the heat bill, I'm freezing my butt off.
                  Today, Mirka came to babysit for the first time so that Jonathan could study and I could get some work done. She also brought some of her wonderful chicken soup and a book for me :). She is too sweet. We have another new babysitter starting this week, named Pat. Pat was sick last week and we hope that she is feeling better. Evalyn and I both had doctor's appointments today. Jonathan dropped me off to get my labs done and he took Evalyn to her appointment. My labs were good today, meaning that my platelets are high enough to be able to go to the dentist tomorrow. Yes! No! I walked over to Evalyn's physicians office and since I brought a blue mask, very thick and uncomfortable, I decided to step in. I'm so glad that I did because I got to see her tearing up the paper and took some great pictures. Maybe I should try that at Emory on Friday. Maybe it won't take so long.
My first bath in the bathtub! 
                   This is the week that for the most part I will feel really good. My counts start to head back up, at least, they are up for me, and I start to dread returning to Emory. I had a horrible dream last night that we went to the appointment and they told me that neither person was a match. It was awful. I hope that dream was just one of those "fear" dreams where my mind plays out what I don't want to happen. Then again, if that does happen, it does mean that  I won't find a match, it just means I won't find one yet. Leave it to God to make you wait to the last second so that you will learn to trust him. Geezzzz. Yea, well, I'm calling Emory tomorrow to see if they know anything. God is great and I know that he has a plan, even if it is not mine.

No comments:

Post a Comment