It has been a good and very interesting week. Between Evalyn snotting and drooling all over the place, Jonathan coughing, and me running to the bathroom sick to my stomach for 3 days, all we can really do is laugh and hope that life gets better real soon! I'm sitting here now at Athens Regional, getting a blood transfusion. Not my idea of a good Friday, but hey, maybe it will give me some energy. I also caught a touch of the cold that they had and I'm not sleeping so well. It's really odd going back and forth to the hospital like I do. It's like I lead a double life. Good news, three of the staff here at Athens Regional where I get transfused, signed up for Be the Match since last time I was here!
Evalyn seems to be feeling better. She is eating and sleeping well and has A LOT to say. She finally rolled back over on her own this week although she can't do it every time she wants. Yesterday, she starting kissing me when I asked her too. She opens her mouth and leans into me with her eyes looking to the side. She is also trying to sing when I start to see her a song. She really likes "Splish Splash" and "Your my little Pin up Girl". Evalyn wants to read to a lot and is really enjoying her colors, shapes, and numbers book. She will even pick one out when I hold two up! Well, everyone thinks thier kid is a genius, right?
Jonathan has a job interview coming up with a great company and everything about it sounds just perfect for our family. Please pray that he will do well at the interview and that they will choose him! Scoring a job soon would be one less worry for us during the next very stressful few months.
Everyone is asking, when is the BMT going to be. I'm not really sure, but I think it is going to be in April sometime. I will be at Emory for about 30 days depending on how I'm doing. We are hoping that this next round of chemo, starting Feb. 18th, will be my last until the BMT. I can tell my body is getting very worn down from all the anti- everything medication and the chemo. Continue to pray that God protects the healthy parts of my body and I have strength for each day. I also have not mentioned this one, but my singing voice has been messed up for about a month now. I really need my voice to be healed so that when I sing, I don't cringe . For someone who loves to sing, this is really hard to go through. I'm really hoping that it goes away soon.
I'm so exited for the semi- warm weather coming up this week! I can't wait to get outside some!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
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