WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, March 4, 2011

The Fear of the Lord

I've been thinking about these verses a lot the last couple of days. 
Proverbs 9:10-11 


10 The fear of the LORD is the beginning of wisdom, 
   and knowledge of the Holy One is understanding. 
11 For through wisdom[b] your days will be many, 
   and years will be added to your life


Sounds easy enough.... Fear-wisdom- knowledge- many years. Fear: I think that it is more than simple respect but not feeling terror either. ( I read that somewhere). Fearing the Lord means obeying him and choosing to do his will even when we don't understand. I know that there have been many times that I chose to do his will but I think many more when I chose not too.


I know two people that passed away this week, both of cancer. Gene was one of my neighbors here at the farm and Marilyn was a patient of Dr. K's at Emory that was in the hospital the first time I went in November. I played the guitar for her and her husband. Come to find out, they live in Watkinsville, very close to me. Her husband called me today and said that she has passed, that the medications were not working she was so optimistic even to the end. I'm very thankful that both of them passed pretty quickly and didn't suffer. Still, around these parts, deaths really see to come in threes, but that is what happens when you live around a lot of old folks :). It's very sobering, losing these two this week. 


As the time draws nearer to when I will have the BMT, and be away so long, I have been a little weepy, very prayerful, and increasingly restless. I used to be a procrastinater, staying up all night to complete a paper, stuff like that. But as I have gotten older, I don't like to put things off because it makes me anxious. I have mostly been using my all my energy to take care of Evalyn and to get my paper work done, so using this time to do something productive around the house isn't working. There is a lot that I can't do that I love to do, and I think I'm morning the loss of those activities. Especially, gardening. I will be riding on the golf cart and can SMELL that someone is digging in the dirt. It's kinda sad. Other projects just don't seem very important anymore. We did finish our 2010 photo book that you should be able to view HERE. I think you have to have a snapfish account though. 


Jonathan has had four tests this week and he has had to study every last second. Good news is that he has a job interview lined up on the 14th of March. It sounds like a great company even though it is all the way in
Atlanta. Jonathan works so hard at school and taking care of us. He is the best husband and father ever. I'm so thankful for him. You would think that we would have a lot of time to spend together but the truth is by the end of the day, he is busy with studying, and I'm wore out from the day. Still, there seems to be times where neither one of us sleep very well. These next few months are really going to test us, our marriage, our faith, and I'm guessing, if we fear the Lord. 



We continue to be blessed with so many people helping us out in so many different ways. Food, rides, sitters, prayers, money, cards, etc. It is amazing to see what God is continuing to do through this situation. 

1 comment:

  1. Checking in on you and knowing your so busy with that sweet baby.

    Just remember your in the hands of the Great Physician, Lord Jesus. When I was so sick I looked at Dr. K like he was the greatest, but had to quickly rethink. He is great too.

    Your gonna do fine.

    Charmaine Marlow

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