WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Tuesday, March 1, 2011

What to wear, what to wear, where's my hair

On Monday, I was contacted by Be the Match to see if I was available for an interview on channel 11. Luckily, I already had a baby sitter and know a lot of people that can drive. I'm not restricted from driving but since I'm so tired all the time, it really wears me out. So later last night, I relieved an email about the interview that it was a live show I was going to be called Atlanta & Company. I immediately changed my mind about what I was going to wear the next day. Mr. Frank Reeves was my driver for the day and it was great to have his positive energy around. I wasn't very nervous. I think that everything that has gone on, I don't have time or energy to worry about being perfect or looking all that great. Not that I didn't, for someone bald. :)  I have told my story so many times that I could say it in my sleep. Now... putting on makeup with no eyelashes or eyebrows... that was interesting. I met Tiffany from Be the Match and had a great time talking with her about my upcoming transplant. The host, Christine , was positive and made us feel very comfortable. I think I would like to be on more shows, but as a survivor next time.  Click HERE to watch the video. I'll have some pictures up soon!
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