WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, April 4, 2011

Day +4 and +5 In the Basement

Hello Everyone. As you can imagine, I'm going through a lot of pain right now and there is not too much else that they can do for it. This is just something I will have to pass through. Now, I have to use a suction tube, think dentist. I have to use it when I have too much saliva and it is too painful to swallow . Gross, huh? I wonder if when Jesus went to hell to get the keys, what all happened during that during those 3 days. Share what you think about that.... I found some materials on it but can't read it.  It is very hard for me to concentrate on anything more than a comment. I'm sitting in bed right now with my laptop and find myself nodding off. I could probably fall asleep most anywhere, except at night in my bed, at the hospital. It is not only the medications but that I have not slept well in many days, I'm weak due to not eating, and that I am in pain.. My parents, Jennifer, and Jonathan came to visit this weekend. When you're stuck in a room, time gets all messed up. Yesterday went by a little faster than today. I really can't believe that it is only 1:30 pm!
Painful sores in my mouth :(

Off to try and sleep some more.
Heather
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3 comments:

  1. AnonymousApril 4, 2011 at 12:59 PM

    Heather,can you only imagine how much God loves us by letting his son experience the pain he suffered for us. I believe Jesus experienced all the pain emotionally and physically that any of has or will here on earth.
    Praying for your recovery and for your family.

    charmaine marlow

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  2. AnonymousApril 4, 2011 at 1:57 PM

    because of the pain does that mean the transplant is working?

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  3. HeatherApril 4, 2011 at 5:21 PM

    Thanks Charmaine! Anonymous, I'm afraid not. What is happening, is my immune system was killed off by the radiation and chemo. In the process of killing anything cancer and my immune system, it kills all rapidly dividing cells such as the mouth and lining of the throat. This is to be expected. We will know if the stem cells are working around day 10.

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