WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, May 7, 2011

This week in pics and blogs

Our trip to Toys r Us was so fun. We found some needed  items for safety , she ended up with this hat she wore the whole time, and best of all: a crazy deal on organic baby food.. Oh and a braves ball :)  It got a lot of "why is she wearing a mask?" looks from kids, so I just took my hat off and let them see that I was bald too. 
                       I know you have heard me say this, but this chemo thing is real. If I'm every just looking at you blankly and there are other back ground noises, you have probably lost me. Also, if I ever say " I'm out of words" I just cant talk anymore, period. My general math skills and memorization skills have suffered but somehow I still remember a lot of phone numbers. Audible learning for me right now is not happening. Poor Jonathan gets frustrated with me somethings, with something that is so simple and I just can't process the info, I have to see and do it, which has always been the best way for me anyway. So I say that to say... the pics or events may not have happened on the day that I remember. I thought that Wed was Tues all day this week. I find myself saying "I don't know" a lot lately, which is very strange to me, because then I would have to find out.... I don't care to know everything the way I did before. I just trying to remember what I'm doing now.
We like to have a lot of fun around the farm. We briefly went to a luncheon  for Mr. Frank's birthday. I didn't get to eat due to the crowd and had to keep my mask on for the whole time, but I took some food home. I did decide that my present to Mr. Frank was a song... since I'm just getting my voice back. I put on my Marilyn wig and sang him the sexy slow "Happy Birthday" that she sang to JFK. I didn't even have to pretend I was on a lot of medication. Everyone thought it was great, wish I would have got a video. 

Being a good girl at the club house. 

This girl likes to be upside down so that is why everyone is smiling in the pic. Then I went home and took a nap. 

               Some good changes in my life over the last week is that I've been getting up and hour earlier than Evalyn, having devotion and then exercising or doing something else like getting all my med stuff ready for the morning. I have always found it hard to find time to do a "quiet time". I'm reading a great little devotional that Mirka gave me called  "Come away with me, Beloved" by Frances J. Roberts. I like it because it is short but deep and then  I read more verses and make notes. One of the quotes that a really touched me this week was "Rest in me, I shall bring to pass My perfect will in your life, as you believe and live in faith." WOW. This chemo brain is good for one reason, things I knew about bible history and verses I knew a lot are gone, so I can't walk around anymore thinking "I already know that." It has been a joy to rediscover the love of the Lord and delight in reading his word. Now what is funny is trying to memorize some short verses. I feel like Barney Fife when he is always trying to repeat things that Andy says but never gets it right. Ha ha
                Another positive, I actually put this on facebook, that since I will have sensitive skin for the rest of my life and can only use a few different things, no one can get me bath and lotion stuff for presents. Not that I hated them before, they just always seemed to pile up. I've never been a big take-a-shower-every-day girl, maybe everyone thought I stunk. Big hats, sunglasses, parasols, pretty gloves, etc will all just be me.... sounds fun. Now to find some vintage summer gloves to wear with a dress.......speaking of.... I finally used my gift card to pinupgirlclothing and got the best dress for the big party on the July 16... boy, I've got to get on sending out those invitations. I also got a some crab earrings. This was a Christmas present from my mom that I had to end up sending back. It was so much trouble to use my store credit I got free overnight shipping. Yea... I'm done with the internet shopping, I'm about to sell five things on craiglist and ebay, even for other people. Any one need an organ?

We got remission to go out to eat during a non busy time. We are all trying to put more clothes on and less PJ's on around here.

We went to Casa Mia, one of our favorite places. She ate of a plate like a big girl and had Cevehie,  avocados, and pretty much what every we ate. She was such a big girl an was smiling at everyone. In face, she looked disappointment if each person didn't stop at the table and admire that she didn't have a sleep and play on and had such good table manners. 

We had a great time, first time out as a family in forever. 



               

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