FYI .... this was written like 2 or 3 days ago... I think.
Personally, I'm having issues with a certain person that I can't even write about here, hopefully in my book I can be a little more truthful about things. I try so hard with this person and they never give back. I know that's not the point and I'm sure there is some great lesson here but right now I'm hurt about it and maybe that is ok for a little while. So you can pray about that if you want. I don't like feeling this way. See, we expect people to act the way that we would act, which doesn't happen. We project ourselves on others and think " well if I were them, I would do this, or at least do this." And it just doesn't work that way.
Physically, I have weird spots on my face that itch, a rash on my arm, cramping, bone pain, headaches, and I'm so tired. It's been really hard to concentrate on anything. I'm afraid I'm going to be making an extra trip to Emory this week.
As usual I remember bits and pieces of a week. I remember getting an awesome massage on Tuesday, going to the a shrink on Monday, working, going to the chiropractor and eating a lot of sweets. There was one point at my grandparents house, I usually work over there, where I started not to feel well and crawled in the bed right in between my grandparents. I thought it was pretty sweet. Oh, on Wed. I took my father and pop out to eat at an awesome local restaurant called Brett's and then we drove about and saw some more of pops brick work and houses they lived in. Pop and I went into one of the houses that he bought and lived in twice, weird huh, and met the nice guy that lives there. I try to buy a coca cola table and chairs off of him.... I think I have watched too much American Pickers this last month.
Evalyn went to my parents house on Thursday and we are picking her up today, Sunday at IKEA. We miss that little book handling, dancing, couch chewing, dog chacing, silly, cute little girl. We are going to try to find a new carseat today that will fit in out little car...... yikes. We really need something bigger. Who knew when I bought that jelly bean car I would get married again and have a baby so soon. God did..... it was a divorce purchase.
AJ, my friend that is getting married and moving away from me, her mom Ann, and I spent a while on Thursday night planning some of her wedding, it's going to be so pretty. Friday was interesting with all the storms. We went to the movies, very rare, and saw Super 8, it was pretty awesome. Kinda like a Stand by Me for todays time. Then we tried a new restaurant called White Tiger and it was so good. We met a couple there that Jonathan had met at the Athens donor drive. She is 2 years post stem cell, so it was great to talk to someone that far out. We had crazy storm and had trouble getting home due to all the fallen trees, it was really a mess and Chloe was freaking out when we got home. Poor puppies. The power was out, so we went to bed. My actual birthday, Sat, we went to a store and bought Evalyn a little gift, more little books and to my friends yardsale. Jonathan did some manly hanging up of stuff and I took a nap. Later my step daughters, Rileigh and Corynne came over and we made dinner together and watched Across the Universe, an awesome Beatles musical. They are some awesome girls!
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
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