Below my neck is so tired, I literally feel like I don’t know where my feet are…. I think it’s kinda the sensation where if you had a an amputation but you kinda felt you still had an itch. I never thought I would brag on support hose, but they have really helped the swelling go down in my feet and ankles. They don’t hurt as bad either. Geez, have you have no idea how hard these knee highs are to get on. It’s like panty hose times 50 at least. Wow, and expensive. Did NASA create them to keep blood flow up? NASA invented the bed that I love so much…. Stop calling me, temperpedic!
I still have the rash thing going on but it seems to be getting better. I decided that the pool water on Sat was just too cold to risk making it worse. You have to weigh whether a trip to Emory is “worth it” or not. I must have done something though because my throat is hurting. As you can tell by pictures and soon to be posted video’s I am pretty swollen all over. I have the prednisone pot belly, feet, and neck. The swollen neck is making me snore a lot, which I feel is aggravating my sinus cavities even more and causing increase drainage along with some self-esteem psychosis. (I was supposed to be a Dr.) I may also have some issues with my sinuses after have mucosis so bad during the BMT. That was where I had sore and really gross mucus from one end to the other. Yea, it was bad. Most painful thing I have ever gone through.
No worries Mom, I’m going to the doc tomorrow. Not just any doc, either. He is a newer internist in town that was the head of the Dept of Internal Medicine at Emory University. I’m hoping that Dr. Khoury and he know each other but if not, I’m sure they will figure out how to start coordinating some of my care here. I didn’t want to pick a random ENT and waste my time. Everyone seems to want you to have some type of surgery now days; insurance pays out big, in case you haven’t seen our statements.
So far, over the next 2 weeks I have an MRI of my liver, a CT scan of lungs, a bone density scan, random blood labs, and there will probably be some type of scan of sinus cavities. Discussions of menopause issues with my OBGYN should be interesting next week as we figure out what should be put in my body in the mist of this quadratic formula. My prednisone will be reduced and hopefully keep reducing and I will be starting the oral chemo again. Please pray that the oral chemo doesn’t give me migraines as it has in the past and make me so tired.
Right now, I’m going minute by minute and glad Jonathan is here right now to help with Evalyn. This too shall change. However, I could be up in two hours organizing something. I keep thinking that recovering from this will become more stable, then there are days like this. Music notes… "Mama said there would be days like this…."
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