WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Wednesday, September 28, 2011

Medical and family update 9/28 Hot as Hell


Not sure if the HRT is not working or if I'm slowly succumbing to the depths of menopause and need another blood test so see how far I have slipped. I was so hot today that I almost threw up today and had to take anti nausea medication. This really irritates me, this is not suppose to be happening right now at this time in my life. I do have more energy since starting the HRT but the medication that makes me feel better is expensive and we are trying to figure that out now. Oh yea, I need a massage too, not sure how I'm going to manage that one right now, but there has to be a way to get it covered or at least a copay. I also feel that I'm on edge, I just feel ill.

Jonathan has had some interviews that we are waiting to hear about. Please pray that the Lord leads us to do what is right for our family and in line with his will. Evalyn is starting a day care tomorrow. It's one of those drop off ones that doesn't have to have an appointment. It will be great for last minute sitter cancellations and doctors appointments. This is a big move for her and us. Please pray for her health and my health. Anything she gets could potential be a huge deal for me. They are interested in me playing some music there and we may be able to exchange some music time for sitting time, which would be great!!
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  1. AnonymousOctober 5, 2011 at 2:29 PM

    Praying for you my friend it is not as it appears. Are you taking Gleevec or Sprycel?I am on Gleevec 400mg daily. Our other ALL Ph+ friend Katie also needs our prayers. She just had her 6 month BMB and got mixed results. One says negative but the biopsy says 3% leukemia. See attached link.
    http://katiefightsleukemia.blogspot.com/2011/09/ready-for-new-week.html?showComment=1317849723968#c6575029665393631011
    We are all fighters and God will not leave us, we can trust him.

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