WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, January 16, 2012

Evalyn's 18 months old!


Here are some videos and pics of Evalyn, on and around her half birthday. Here, here, and here



She headed somewhere, even kissed me good bye.

She loves to read with Am-Ma.

Hello?

1 1/2 candles.... we take it day by day here.

All dressed up, even sticky earrings.



                   We are so blessed to have Evalyn. Many days, she is the only reason I have the will to get out of bed, eat, or do anything besides lay there. She is such a  joy to be around and is learning new words and new signs all the time. Today, she said "okra". We have been reading a lot of books and right now she really likes her Sesame Street letter books  that I got for 30 cents each. She is also really liking her dress-up clothes, shoes, and jewelry, but also enjoys an occational romp in the dirt while looking for acorns. She has finally started saying dada when he is around more and will go through a list of word lately in her crib: "MaMa, DaDa, Am-Ma (Grandma), and Nana. Our Nana has gone to heaven and we finally figured that she was saying banana. I guess she is really hungry in the morning. She is doing great with her fork and spoon and even ate cereal with milk this morning! She continues to bark a lot, but we are a dog family. I really think she communicates with them. She has some girl friends that she has been able to play with and one little boy that we know said he was not just going to give her a hug, but that he was going to give her a kiss! We went to '123 Jump' a couple of times and Evalyn seems to be getting the hang of it. Please continue to pray that she grows strong, smart, and stay's safe!

1 comment:

  1. Happy One-and-a-Half Birthday, Evalyn! You are loved by so many people!

    ReplyDelete