WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, February 16, 2012

Evalyn's 19 months!

Wow, this month has really flown by.... or my chemo brain just can't remember things in order. Evalyn is really showing a lot of personality. Crossing her arms and saying no is a new favorite, then, she will change her mind and say yes if it is something she wants to do.... of course some things don't have a choice but I try to have he comply first. She is loving all thing girly.... which is the opposite of anything I'm doing now. She has to have her hair fixed, earrings on, a necklace, and loves to ooohhh and ahhhh at anyone else's jewelry. Strange child of mine. She even wants something on her lips so she can do the little lip smack. It's been a round few weeks and now she is taking antibiotics for the first time in her life, but I can tell she is already feeling better. Jonathan is on them too..... wonder what else they could put me on at the Emory Appointment on Friday... today... yes... I'm still up. Always get a little nervous. Evalyn continues to be such a blessing to everyone. Here are some pics of my sweet Evalyn Rose.
She loves to watch cartoons with Poppa Bill when we are lucky enough to eat breakfast there!

Evalyn with Grandma Verna, a friend of mine, and they only reason any laundry is done.


Showing off her new earrings.

We haven't learned not to pick the flowers in the neighbors yards.


This is my outfit from 30 years ago.

If you can't win as a Bulldog, then ride one....she loves to kiss these statues. 

Sister Anna came to help watch Evalyn and is doing a great job at an animal shelter in Covington. 

Four Warrens in a pic.... rare...my aunt Judy got me a Rasberry Cream Cake that is soooo yummy. 

Giving her Poppa Bruce a big kiss... sorry Fay,  had to crop the pic!

This week was so hard.... Thank you to those that send cards, money, food, baby sat, helped with plants, dog, called, and prayed. Thank you, Thank you, Thank you and God Bless. We are truly blessed to have support through this.

Love,
Heather 
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1 comment:

  1. DanFebruary 17, 2012 at 10:23 AM

    She's adorable...these kids of ours grow quickly, huh?

    It was nice to bump into you at Emory today. I get nervous every time I have to go, especially when Dr. Khoury enters the room with a small army of people in white coats to "observe". I was asking him about the newer CML drugs and he said that Ponatinib is having *superior* results in clinical trials so far. I am so happy that it's working well for you...

    Keeping staying strong!

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