I want to share some of the encouraging and interesting media/web pages, I have seen over the last couple of days. We watched a movie called Seven days in Utopia and it really lifted my spirits. I wouldn't say it is the best made movie and it does have a " there's a God in Heaven" slant, which is good. It wasn't crude, violent, no cussing, no nudity, drugs, etc. Amazing, they can still make stuff like that. By the way, they took my Cosby Show off instant cue on Netflix.... very sad. Robert Devile is in the movie and he is always funny to me. One of the ideas that I took from the movie was that I needed to bury some lies about myself. I'm not done figuring out what those are, but I'm sure I have some issues. My purpose here is more important than any sucuss, any accomplament, my weight, my looks, my plans, etc. This also goes along with a quote from my quote box, the someone name Jill made for me, the " Hope is not a feeling, it is something that you do." I guess that always made sense with faith and love, but I never thought about hope because sometimes I feel hopeful and sometimes I feel like dying. So when I feel really bad and down, I can choose to still have some hope. And I do, just smaller than a mustard seed at times.
I also read a blog from a mom about being sick when you are a mom and it really took some of my guilt away about this last week when we were all sick. We sat around too much, I didn't get anything done, didn't go exercise as much, ate like crap, yada yada, but what i did do was live through it. We all did. And here I am, still alive. Well, how bout that? People continue to be positive, sweet, generous with time and funds, that my faith in people as a whole has increased in the last 2 years. We had someone send us a check and presents for Evalyn. We also had an offer for Jonathan and I to go away for a night and they would watch Evalyn. Someone I care about has not smoked for 5 weeks! I was able to hang out today with my favorite 15 year old, and I will claim her as my own, Corynne. I have a little girl that bring such joy to the world and brings me her little gold bible and points out Jesus and gives him a kiss. I have a husband that loves me despite my moods, health, weight, hair length, ability to complete tasks most mothers do with ease. He is truly wonderful and as my sister said last weekend "the perfect guy for me." My grandfather fixed me the best cheese toast on Sat night. A little boy, William Robert, was born healthy this weekend. With so much more misery in the world, now and in the past, I continue try to be content in the mist of pain and suffering. I couldn't not do that without the love I know the Lord has for me and the people that have pulled together to help us. I only hope that they are blessed as they have given times 7, or 10, whatever the bible says :) I also found a nice easy yoga video on Netflix called Yoga for Aches and Pains.
I have joy in my heart to say that whether I sleep at all tonight, have horrible pain, or anything else, God is in control and I can rest my heart there. I don't have to understand why. Hmmm.... there's one of those lies I need to bury. Oh the molting of my skin right now has to be number 3 on my list of gross things that have happened the last two years. You don't want to know about the first 2... just not ready to share.
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Monday, February 13, 2012
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