I'm trying to get back into the groove of a routine after losing another week of my life. Still have not written it down but I'll get to it soon enough just like everything else. Didn't have bad bone pain last night but did hurt, I sucked it up till about 4 and finally took one of my low dose pills. Didn't sleep much, too nervous about all this bone stuff and excited about the bone marrow drive I posted about in the last blog.
God has been speaking to me a lot in different ways lately, and not really giving much warning. For example, out of the blue I felt like God wanted to go to my parents church on Sunday to sing and give my testimony. We may or may not go... depending on what my parents want to do.
Another weird thing that happened last Monday, was that I was out in a consignment shop that I have never been to and I'm looking around and one of my paintings was on the wall... an unfinished big painting. I think I must have given some canvases away that I never that I would finish and thought someone could paint over them. My sister Anna was with me and I told her to watch when we got home and I would find the picture I took of the painting (I paint mostly from pictures) and I was going to get the painting back that it had to be finished. This also kinda confirmed something else I have been praying about: what to do with myself if and when I get over this next hump. I had wanted to go back to school, but we don't need any more loans and I'm advocating for my brother right now and it's nice to do with no job because I can't get into trouble. :). Then I have the art side of me. I make a lot of different crafts mostly just for people's presents and also love to get stuff for free and reuse it, like a shadow box made out of an old drawer, and earring holders out of pieces of an old shelf. Then of course I love my vintage clothing and kitchen items. So I have been thinking of renting a small booth at a consignment shop.
Don't have a verse today, just listening to what he wants me to do. Woo, the night is catching up with me, need coffee and some stretching, then getting the girl up to get ready for the library today! Pray I can get on and off the floor... mainly off.
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Tuesday, March 27, 2012
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