WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, March 31, 2012

Picture Blog 3/31

This is the most famous ad ,    wait that was me before  40 lbs and chemo... enjoyed while it lasted I guess.. just like a coke.

We are at my parents now, I'm super sick to my stomach, on the verge of having to go to the hospital. Right now I'm waiting to see if this stomach medication works in the next hour. Please God, don't have me go there this weekend. So for now, I'm going to put up some pics of fun things we have been able to do over the last couple of weeks. Enjoy

St. Patrick's Day!

Bagpipes were awesome, so were the dancers, and drum lines.I also enjoyed the old cop cars. 

Yes, I did have to talk him into this. I finally scored him some beads, I didn't have to do anything crazy, just ask. 

There were the cutest kids there, I heard one say " This is the best day of my life!"

St. Patrick I presume. 

I was under attack by Kermit. 

Just being silly, and leaving feathers in my wake. 

Ummm..... there was some type of anime convention going  on. 

Rainbow bright... oh how I loved her.



 Coca Cola Museum 
It was great to see a lot of the memorabilia. We have a small collection and I love the vintage bathing suit ads.  






It was really crowded so I had to wear a mask and my legs were already starting to hurt  from the day. I decided the best thing to do was use a wheelchair. It was a pretty good dent in my pride, then we got to skip all the lines outside in the sun and people moved out of my way. I got to tell a few kids that it was a ninja mask. Now the big mistake was after we left, I refused to pay a cab 12 bucks to take me two blocks up hill. I paid for it later. 

Love old bottles! I collected blue ones but may branch out.

In the retro room. That couch was more comfortable than it looks. 




Fun at the Farm 

The beautiful bulbs that Fay  planted last far. 

Noah and Evalyn are becoming friends.


Gorgeous 

Sarah and Noah at the Farm. 

No, I'm not going to look at you, we are about to melt because it is our nap time and we are hungry and we don't have the reason to worry about anything else.


At Emory

I was able to take a break from the room to meet my new nephew , Will. 

My brother Scott came to visit me at the hospital, very sweet.


More Fun with Friends and Family

Emma and Isabella at the library. 

With her Daddy...... she says "Where's Daddy at?"

Learning to not throw the whole fishing pole into  the lake. 


A beautiful evening at the farm.



She loves her Bible and her new Easter book. She will go get them and  act like she is reading them by herself. 



Time at the library with friends. We also have had other friends join us, I just need to get some pics.

Evalyn is getting more comfortable playing with and sitting with the other children. 

This is weird. Random pic from downtown at the Grit.



The 20's Fundraiser

There was not as big a turn out at this fundraiser for Project  Safe  but it was fun to dress up, dance, and  meet people. I meet two other people that knew or had leukemia and was able to give them my information for support. 

The Georgian Hotel is beautiful. We didn't get to try the food but maybe next time. They had at least an  8 piece horn band that was amazing. I watched a couple of videos on 20s dancing and it's so easy.... just a lot of singing arms and kicking legs. I won the dance contest! 20 bucks toward Your Pie.  

2 comments:

  1. Heather,really enjoyed looking at your pictures and hope and pray that your nausea subsided and you didn't have to go to hospital. Leave for PC with girls in am, wish me luck! Love and prayers, G'ma Judy

    ReplyDelete
  2. Your the best Grandma ever....get some R&R yourself!

    ReplyDelete