I'm going to Emory today to see my new bone doctor and then I will be seeing Dr. Khoury and really need your prayers. First, that that they don't admit my butt, although, I will be prepared and that what they have found already can be stopped in it's tracks so that that I don't have to have any surgeries in the near future, or ever. We have only had MRI's of my knees and they are not looking so good. Other points of pain are in my lower back and hips where they found osteopenia last year. My vitamin D levels have been very low, 9, out of 40, so my body has not been able to absorb calcium and at the same time the chemo has been taking it out. I also have pain in my wrists, hands, feet, elbows, and ankles. I would like to be able to get back to my usually exercise routine because it made me feel so much better. Also, I start the study drug again today at a lower dose. We are still experimenting about really happened last week with the stomach sickness. We ruled out C diff and CMV. It could still be GVHD or the study drug. Or it could have been a very bad stomach bug that is going around, causing me to be a hermit. Please pray that I tolerate the study drug with no rashes or stomach issues or any other side effect. I need this medication. We also get the biopopsies back today for the colon scan, please pray they are all negative.
This girl has some moves.....
You bet, Heather. I was at Emory yesterday for a blood draw and peeked around for you just in case...looks like we missed each other by a day. You are taking on this journey with so much courage; your strength is an inspiration! I will pray for negative scans, and it will be good to get you back on Ponatinib, even at a lower dose.
ReplyDeletePraying, praying, praying Heather. I showed the boys the pics you sent in the mail and they were glad to get to see who we are praying for each night- Love you guys!!
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