WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, November 18, 2010

MJ 11/18

       Hey everyone, Just an update on medical stuff.... I've been a little out of it since yesterday and some of you may wonder where I went and I can always use some prayer. After 4 days of steroids, I crashed last night and today. I couldn't really do anything, which is very frustrating to me because I always feel that I need to be DOING something. I just slept and slept and only left the room once today, and I didn't like it. My head was hurting and my body is just tired. Yea, I know, chill out Heather. I just like to stay busy :).
      Basically, the chemo has wiped me out and killed everything good and bad. I have no immune system and now they are waiting for my body to start building back up. If my counts are high enough, I will be able to go home maybe Tues or Wed next week, but then I have to be back that Monday for 5 days. I really would like to be home next week because Jonathan is off all week and I'm going to need a lot of help. I get really tired easily and although coming home is going to be great, it is going to be really hard too. Then I have to turn right around and leave again. I have done pretty well, with the Lord's help, keeping my wits together. Please pray that  I continue to be able to that. I can see how people could just LOSE IT. I do not think for a second that I'm above that. OUR new life is going to be a huge adjustment, beyond what I even know right now. There are all these rules I have to follow.... :(     My hair is starting to fall out today. It's more annoying then hurting my self image.
          My main doctor, Dr. K, is amazing. He told me that he is not going to let me suffer with the bad migraines. Awesome. We may either change the dose or switch to another medication. I'm in the clinical trail for 2 weeks on the oral chemo and 1 week off, and so on. He was reviewing my charts and noted that I was having the headaches and came by that day and said that we would stop it for now. The Fellow, Dr. P, said that she overheard Dr. K saying that we had to get rid of the headaches so that I could show him how I play "Time in a Bottle" by Jim Croce. Ha ha. He came by 2 days later and I played it for him and them my doctor played the guitar and sang for ME! Isn't that awesome?
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1 comment:

  1. UnknownNovember 18, 2010 at 7:00 PM

    You must be the best patient ever! You totally need a video of you guys playing together!

    ReplyDelete

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