WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Sunday, November 21, 2010

The Music Drive for 6E

             


        Hey everyone..... the patients here on 6E need your help! I'm looking for people to help with making this oncology floor, 6E even better. Most people are blind sighted by a new diagnosis and then told they are going to be away from home 3-4 weeks. Let's just say, unless you make it happen there is not a lot to do here. Next... we are going to work on the book collection, but one thing at a time.  We all have DVD players in our room and they have come DVD's to check out. However, the DVD is really high up and a lot of the older patients are scared of DVD's. Boo!  Music has been the best therapy for me during my extended stay here at EUH and I'm lucky enough to have an Ipod and computer. I think it would do wonders if each room had a small portable CD player/radio that is simple to work. I will take a while to get them in all 20 rooms here so we will start off with a few to check out. I'm telling you this will help these people heal. So I'm asking people to donate used portable CD/radio players ( they can have a tape deck too if it does) to purchase a working one from a thrift store, or purchase a new one as a Christmas gift for this floor.
                For those that would rather make or donate CD's that would be great too. Please make sure that they are labelled and in a protective case if you are making CD's. If your are like me, I have all my CD's on I tunes and don't really need to CD's anymore. We have backed up all the music so what is the point? I'm working with the director about getting a shelf in the waiting area for this. I'm also working on drop off points around Atlanta/Cville/Marietta/ and Athens if you would rather drop it off than mail it. Please just let me know where you are and I'll let you know where you can take it. Then, on my many 5 days trips here, I can bring the stuff with me. There are a lot of sick, lonely, and bored people here that need our help! Music can help heal!         
           You can email me at heather.cape@yahoo.com

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