WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, November 22, 2010

Nov. 22nd I'll be home for Thanksgiving...do, do, do, dodo

         Wow.... sitting here at our wonderful little home.... I couldn't ask for more! What the heck am I doing writing, you ask. Well, my sweet baby girl is sleeping right now, poor Jonathan had to go to pharmacy to pick up   my 8,000 medications, and the pups are so worn out by the excitement they are laying out. Unpacking? Hmmm....I don't think so, not yet. I spent forever packing so nice and neat that I want Jonathan to be here to see it, because he may not believe it. I have to be back Sunday or Monday for 5 days so we are trying to just keep some things packs..... a well oiled engine.
         I am so blessed that my count were high enough to come home today. Besides some bone pain, I'm feeling great! As soon as I found out that I was on the discharge list, I started lighting fires under people at 8am.... just little fires. I thought it was reasonable to be able to be discharged by 3pm so that we could miss traffic. If not, then they couldn't have my room till 6:30 because I was calling my ride off till then. Plus, no one had to help me pack and I took care of a lot of stuff myself.... easy patient see.
          My super cool college house mate, Ted, was off today and came and took me home, along with his doll of a girlfriend. I'll call her K for now. I was glad she came.... it's always good to get that you my boyfriends "girl" friend from his past, out of the way as soon a possible. We decided we liked each other. All is well.
            I pulled into the Farm, that's where we live, and saw my good friend Carolyn. She is the most wonderful women and watches Evalyn on Wednesdays. She is the one that gave me the Donald Miller book "A thousand miles in a million years", right when I needed it. Anyway, I rolled down the window and saw tears in her eyes.... there it goes! We did a drive around the lake and I saw my Mr. Jim fishing on the lake in his yellow boat. I was told today that I can fish but I can't clean the fish. We pulled up and Jonathan came out with Evalyn, Chloe, and Wallace. I was crying happy tears of course! Wallace looked at me like "See, I knew she was coming back. Hi Mom!" We played with Evalyn for a while. She is so strong now!
             The Lord has done and is continuing to do amazing things. I had a friend from high school who said that coworker of hers decided to make me two hats and is mailing them to me. Nicole said that her coworker now feels that making hats for cancer patients is something God really wants her to do and I got the first hats she has made!
             **Prayer for a Patient** I mentioned a patient that Dr. P wanted me to talk to and we met last night. She and her husband are pretty shaken up but they are Christians and are leaning on Him. She asked a lot of questions and was glad to be able to give her some answers and a lot of tips that will help her while she is there. I didn't find out till the 18th day that there was a washer and dryer I could have been using instead of my underwear being dragged from Cartersville, Lilburn, and Athens and back. Hello. We will call them Family C, if you would like to pray for them. If she is still there next week, we are going to have a movie night, hooked to our chemo.
                  I'll have some more medical MJ tomorrow. Thank you all for the support you have given, it blows my mind. The Lord has bless us and I hope that you have also been blessed. Thanks be to God in the highest!
Now, I'm going to prepare the first bottle for my Rose that I have made in 22 days and we are going to read a book called "Puppies and Kittens".
I'm cleared for fishing my delicious bass!

1 comment:

  1. Yesterday: One of the best days of my life because I got to see you again... at home!!!
    AND... The longest pharmacy trip of my life.

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