WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, November 20, 2010

Nov. 19th THE SHAVE

                      I woke up yesterday morning with clumps of my hair coming out… blue mind you.  It was all over my bed, anything I touched, the floor, my food, and what I was wearing. I didn’t want to leave the room, one, because I was super tired, two, I didn’t want to leave a trail of blue hair. I knew my mom was coming with the clippers and couldn’t wait for her to get here. I felt like I had grand daddy long legs crawling on me… icky. As I said in the medical MJ, I didn’t feel well at all and there were several things going on.  Funny, after  I wrote the blog about how I was keeping it together, I was not keeping it together.  Luckily, my mom took care of me. She washed my clothes and dishes and helped me do other stuff. I was frustrated not to be able to do it myself! Thanks for helping Mom!
                 The perfect storm:  I received a call from my mom that this morning Evalyn rolled over for the first time (I should be there), Jonathan didn’t feel well and may not be able to see me, and I was about to SHAVE MY HEAD.  Could I really be trying to pretend that it was ok to shave my head?  I also had had just about enough of everything. I’m ready to go home. So for the first time really, I  was just sobbing in my room. My sweet Tech Gladys gave me a hug and encouraged me. I guess sometimes I don’t want to cry because I don’t like making other people upset and I don’t like my eyes to hurt and or to be stuffy. I even asked my Dad not to come visit because I felt horrible inside and out and didn’t want to have a pity party in front of him.  That really bothers me. Does it you? I want to be happy, smiling, productive, have energy, be positive, and when I don’t I feel guilty a little. Yea, Yea… don’t be so hard on yourself Heather. I’m sure you have things that you are hard on yourself about…. YEP. 
                 My BFF Jill and my Mom were here during the shave. I was a little worried about my mom cutting my hair… sorry mom…. But it was scary. So we did it pretty quick and then it took an Act of Congress        ( energy wise ) for me to take a shower…. I was too tired to cry about my hair, or lack of.  All in all, it doesn’t look as bad as I thought it would. I’m glad we didn’t all cry. No stuffy nose.  I just have one request in the hair department Lord… maybe two… I take the second over the first.  This was my selfish prayer         " Please Lord do not let my eyebrows fall out because I’m too lazy with make up to draw them on…. And since hair grows back different after chemo… how about some thick wavy hair?"  Yeaaaaa     What is great is that Jonathan, Evalyn, and I will all have no hair at the same time J The BALD CAPE’S



2 comments:

  1. Now you, Jonathon and Evelyn have the same hair style! It looks really cute on you! Anyway it will grow back and who knows maybe you will get the thick and wavy hair you desire!

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  2. Like I said on FB, you continue to be blessed...it looks cute!

    I do hope you can keep your eyelashes and eyebrows. But...the same place where I bought your scarves sells them! They are on the pricey side but apparently one pair can last 2-4 mos. I meant to give you the link to the site anyway, lots of good stuff there AND they have a gift registry! It's Headcovers.com. =)

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