WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, November 19, 2010

MJ 11/19 Blood please

Hello!
        Today was hard because I was so tired. I could hardly get out of bed, I could hardly talk, think, and couldn't smile. My counts were so low that I just didn't have anything left. I was only .2 from receiving a couple of units of blood today, from my middle of the night labs, and really felt that I needed it all day. I felt that if my labs would have been redrawn I would have been under that line. I mean really, would anyone have said "sorry dear, your migraine is only at a 4. If it was a 5 then we would give you some  pain medication and you could feel better." Um, no, I have been turning away medication. I could get whatever medication for anything I said I was feeling.  I  thought that if they are pushing all these pills and I just need a little blood to feel better, for the love of God give me some blood.  At around 7pm, I finally got 2 units of blood and within a little bit felt like myself. I could think clear, felt like I could walk, and actually take care of myself. I'm glad that I advocated more myself, even it it did take all day.
          I thought that you all in the medical field would find this funny. A couple days ago, respiratory came up here to check my O2. As you know, they are already checking my vital signs every 4 hours. It dawned on me.....
" Excuse me, why is respiratory checking my O2 when my vital signs are in the system every 4 hours?"
 The lady, who's name shall remain anonymous due to how stupid this is, said,
 " Well, we are from a different department called respiratory, (I smiled sweetly at her thinking this is going to be good), and we have to come up here to be able to charge you."         WOWSERS
" But why do I need to be charged again for someone that is already being completed? " I must have looked at her like she was an idiot at this point but I was really just trying not to laugh.
" Well, your O2 looks good, you can have your Dr. D/C it."         Thanks Lady.

                I thought this was so weird. What a waste of money. Also, my immune system is impaired, so that was one more person coming in here from other patient rooms, one more person talking to me, one more person asking me to do something.... Well, it's one less now :)

1 comment:

  1. Well, I am glad the hospital found another way to charge you! Geeze! I hope you have a good Saturday, cousin. We are thinking about you.

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