WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Tuesday, November 9, 2010

Nov.9th Should I Leave the ROOM???


I just think this is so ironic. Sometimes I do a little funny complainy voice like a 5 years old feeling sorry for herself to express something I'm dissatisfied with. Such as bending my brow and saying " I"m not happy." My sister does this too. Jonathan thinks it's cute. Most of the time I'm serious about what I say I just like to say it silly. Hey, I told you I was weird. Your the one reading this. So..... sometime ago, maybe for my sister in laws wedding, we stayed in a hotel and I did my silly voice " I never get to order room service." We'll guess what..... I got it baby!. I should have added smoothies to that.  This morning is good. Making mixed CD's this morning.... gosh I do remember doing that with tapes.... crazy. I still have not ventured out but I'm thinking of going to the fridge later... I have moved to  the chair for a little while... wow dream big :).  my night nurse and I joked that I should dress up like a doc and walk down the hall nodding at people. Not a bad idea really. I think I can play the part. I have always thought it would be great to dress up and make people laugh like in Patch Adams... maybe I'll do that sometime. God knows I'm silly enough.
My food service lady, Linda, is very nice. She gets ill with the new PDA things that they are using to take orders. The PDA's are down right now, so she seems happy about it. I don't blame her, if you have every seen me try to use a touch screen phone you would know why. Jennifer, remember when we went to the concert? Linda said that she was thinking about me last night and thought that "Cape Heather" sounds like such a nice place near the beach. It's no so bad here. 

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