WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Friday, December 17, 2010
Dec 17th Here again.... and a new flyer!
Hi everyone,
I'm back at Emory for 5 days. We had some communication problems and I thought that I was not going back till after Christmas. Well, it seems that I will be hear every 21 days from the start of day one. Day one being today, so I will come back the next time around Jan 7th or so. Right about when Jonathan starts back to school. It's ok, if it was not that week, it would be soon enough. When I get home, we will all have 2 and half weeks or so to be together, with no where to be (except some doc visits), no school, and no work. Just kidding, I have to work. As I said on FB earlier, this 5 days in the hospital is going to cost the insurance company $20,000, so for me to try my best to keep it isn't so bad.
I like my new job ok, it's just taking some getting use to. I don't have the interaction with my people and their caregivers so it's all just paper work. I have the hang of it for the most part, it's just hard to concentrate for long periods of time. Now that I know what the schedule is going to be like, I can start lining up some sitters like I did before. The only thing now is that I need to get my Papa Bill a wide screen monitor so when I work over there I can see all the forms. Maybe I can just carry mine back and forth. hee hee Jonathan probably is saying "nooooo!" Those of you that know me, know that I break a lot of phones and computers. I break a lot of stuff, not hearts, never broke any hearts. At least I hope not.
I'm on the A treatment schedule this time and yes, I will be getting a LP this week. I have expressed my anxiety over this and they seem to think it will be alright. I'm starting the oral chemo again tomorrow morning. Please pray that it's doesn't give me migraines again. I've been waiting all day today to start my IV chemo but it still has not arrived. I heard a rumor that the pharmacy didn't get the orders. Funny, since the pharmacist came up around 6 pm and gave me a copy of the treatment plan for the week. Oh, my patience really must have been bad for me to have to learn this one. About my Chemo Treatment
My cousin Shanna helped to change the flyer today. Please help out by printing them, placing them at yours or someone you know business, and giving them to family and friends that you will see over the holidays. I still need a match and so do so many other people. I think if you right click it then save it to your computer, then print it out. Thank you for your help!
We received a check in the mail yesterday that is going to be a big help. This person has helped two other times and don't think would want me to share names. In the card, they wrote "I don't know how you do it." Well __________, I don't either. People like you that are supporting us whether its money, food, prayer, encouragement, baby sitting, letting me keep a job, bringing a Santa to Evalyn since we can't go to the mall, etc, etc. and most important the grace and mercy of God. God has a plan, it is unfolding as I write this. I know that, so that helps me keep going. I can't say this is easy because believe me it is so much harder than I thought it would be. But is anything easy worthwhile in the long run. Not really. I could see God working that very first week. So that in turn increased my faith. He said that just a mustard seed is enough, I'm pretty sure that I have that, and so do you.
Jeremiah 29:11-13
For I know the plans I have for you,” says the LORD. “They are plans for good and not for disaster, to give you a future and a hope. 12In those days when you pray, I will listen. 13If you look for me wholeheartedly, you will find me. 14I will be found by you,” says the LORD
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