WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Sunday, December 19, 2010

Dec 19th So far so good!

                        So far this trip has been pretty easy. The first day I was admitted there was a miscommunication between the pharmacy and the orders so I didn't start treatment till 12 am. That means I have treatment every night at 12 for 3 nights. I was supposed to have an LP today but it's Sunday. I requested that it be first thing in the morning so I don't dread it all day. We will see. It looks like I will be here till Wed. 
                        I have had some nausea but it has not been too bad, in return the nausea meds have made me sleepy so I think I'm getting a little more rest then usual, but that is making not get much work done. I'm about to try to work some more tonight. I'm keeping my figures crossed that I don't get the migraines again, I started back on the oral chemo yesterday.  
                        My brother came yesterday and we had a great visit. My parents came today, my friend Cristian that I have not seen in over 8 years, and my cuz Shanna is coming tomorrow. I'm a lucky girl. I also was able to meet some people on my floor yesterday and went down to 6E to play the guitar a little. I met some really encouraging strong people today and we are all praying for each other. Some of them are really sick and some will be able to go home for Christmas. 
                    I miss my husband, Evalyn, and puppies even more this time around. 
Not sure who has the silliest hat

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