WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, December 24, 2010

Dec 24th Granny's home and I'm Happy

                   The last few days have been really good. I've had a little nausea and been tired but it's great to be home. I'm keeping my fingers crossed that the migraines do not return. We continue to be blessed with gifts, prayers, and encouragement. It amazes me the out pouring of love from everyone. Just today, Jonathan told me about a check from one of my old friends parents that I have not seen in 8 years or more. Jonathan passed all his classes and he is glad for a much needed break. Of course, he is now appointment the medical secretary, so he might not get that much of one, but at least it's not tax. We have tons of paper work with all this stuff. My Granny was in the hospital for a couple days and came home today. She is feeling much better and we were able to visit her today, 5 doors down, and everyone is really excited to have her home.
Me with my snuggle puppy

My sis and I both ended up getting purple hats for each other.
                Evalyn visited with her Grandpa Frank and Grandmas Carol today. She seemed to enjoy some of the gifts but enjoys hearing herself squeal even more. We found out today that my sister in law Kristi is going to have a little girl! Our cousins are also pregnant so Evalyn will have lots of friends to play with! The picture of her and Santa was at the Christmas party last Friday night. I was unable to go but Jonathan and everyone said that she was just sweet as pie, she's a doll baby, and Jonathan's such a good daddy :). We can't really go many places but have told everyone, friends and family, that we welcome healthy visitors and would love to see everyone. Just let us know when your coming so we can make sure I'm here and not at Emory! Of course, I need visitors at Emory too and visitors that will bring me yummy food!
Merry Christmas!!!
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1 comment:

  1. JenniferDecember 24, 2010 at 6:10 PM

    Heather,
    The pictures are perfect! I wish you were here with us. Uncle Frank, grandma, dad, me, mom, and Daniel are all wishing you a very Merry Christmas! We love ya'll!!!

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