WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Wednesday, December 29, 2010

Dec 29th Medical Update, Cool new book

Hello,
            I've been doing pretty well the last few days, I'm sure that the steroids have given me a jolt and I'm not really complaining about that. I'm sure that a crash will be coming sometime Sat or Sun, this might interfere with Jonathan's football plans, ha ha. I just have to ride the waves, your know. I also have added a anti depressant/anxiety med to my growing med log. This is mostly because of the hormonal birth control that I'm being forced to take so that I don't bleed to death. Hormones and me do not get along very well. I'm not set on it yet, but I'd figure that I'd give it a try until I can figure out something else. I have not had any more migraines, a blessing for sure. I also have a new prayer request. After I get through all this a would prefer to be fertile and not infertile that the chemo can cause some women. I'd like to have another child of our own one day. So Jill, get to praying, or what ever moves you do to get that stuff going :) I also have some serious chemo brain. I really think that my IQ has dropped about 10 points. I'm going to talk to Emory to see if they have a study going on about it, I'd like to be a part of it.
              My chemo went well yesterday. I can tell that I'm not as hungry today but it didn't take that long once we got started. My counts looked good and I didn't have to go to Athens regional to get blood. Hooray! I did go by the hospital to see my Granny, with permission and a mask :) and she should be coming home tomorrow! Today, I found out about an acquaintance here in Athens, that passed away about a year ago of Leukemia after his BMT. Sad news. His wife and him were deeply in love, you could always tell. Today, I was able to take a walk and that was nice and I went to a friends house for breakfast. It's truly the little things.
              I'm reading a really neat book that someone bought me. It's called The Emperor of all Maladies: A Biography of Cancer  by Siddhartha Mukherjee. It goes through the history of cancer, how they found treatments, and basically takes medical journals down to our level. It is a very interesting and readable book. One of the neatest things I learned was that the all of the first pharmaceuticals were called chemotherapy and the first chemical drugs came out of the textile industry in the 1800's due to the need for new and cheaper dies for our growing cotton industry. Dr. Ehrlich, after many experiments, found the first antisyphilitic drug. His experiments were based on finding drugs that had specific affinity, meaning that the drug can tell which is the host and which is the intruder. This is most difficult with cancers due to the fact that cancer cells are so much like regular cells.
                 The first chemotherapy for cancer actually came out of a war weapon, mustard gas. The doctors, Goodman and Gilaman, studied the long term effects of the gas on solders and found that the gas has specific affinity for white blood cells. They call it nitrogen mustard or actinomycin D. The chemotherapy, vincristine, that I had yesterday, comes from a poisonous plant they found in Madagascar though in the 1958 drug-discovery program through the Eli Lilly company. It also learned about all many people that had to go through highly toxic treatments, and the doctors that had their ass on the line to experiment will all these drugs, so that I can get treatment now that will save my life. It took a lot for them to get to the point of using 5-6 different chemo drugs including chemo in my spine. See, cancer is like anything else, it becomes resistant to medication and will actually come back stronger. Anyway, the book is helping me understand and I thought some one else might enjoy it too :)

Have a great day!

Love, Heather

4 comments:

  1. I heard your story on Fox5 and it touched my heart so much....see my Mom died last year with leukemia but she was 82 years old and because of her age they could not do much for her. They did give her a mild chemo mostly just to help her mentally. The most amazing thing about this story also is my Mom's name was Evelyn! How uncanny! I felt the urge to be a donor and I would love it to be a match for you in memory of my Mom! This would be something I could do for Mom when there was nothing else I could do. There will be a match for you and you will have a great story to tell your "Evelyn"! God Bless you and I will pray for you and your family!

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  2. Heather.... I just saw your story on Fox 5. I have the number to Donate. I will be calling as soon as their office opens. I hope there is an option to choose for my marrow to be compared with yours ASAP! I want to be screened right away!

    Much Love!!!

    Kevin
    KevinKerley@Live.com

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  3. Hi Heather,
    I also seen you on Fox 5 I to will try to be your donor. I will call the donor number to get things started. You will receive this if not from me someone will be a match.God is Great and He will Prevail. Good luck too you and May God Bless you with this Miracle of Life.

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  4. Hi Heather,
    I saw your story on Fox5, my heart goes
    out to you and your family. I will keep
    you in my thoughts and prayers, you are
    such a beautiful person and seem to have
    a great spirit, keep fighting and know that
    you have alot of people praying for you.

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