Well, today was a strange one. I woke up, did some work, took care of Evalyn, felt tired but generally ok, then went to get my Thursday labs. My father, that just moved down from Indiana, took me today, even though I think that I could have drove myself. I always bring a little bag, my Michael Jackson bag, with my medical book (list of medications, etc), a book and mag, and sometimes a pair of PJ's ( didn't today). I didn't pack a toothbrush or anything else because I felt ok and didn't think I would need much. I was super surprised when the labs came back that I needs 2 bags of blood. My Hemoglobin was 7.5, which is crazy, because when I have been that before, I have felt horrible and knew I needed blood.
I thought about it and I guess pain and discomfort is relative and feeling crappy is starting to be feeling ok because I have felt much much worse. I guess I don't know my body as well as I thought or my body and brain are starting to cope with this being real life now. So, I had to go to Athens Regional to get the blood and it took 3 hours to even get the blood started due to having to blood type me and then run all these other tests on it to make sure I got the right blood. I never realized it was that difficult but they have to do extra things to the blood because of my diagnosis and due to me getting a BMT later. They have to put the blood through radiation to kill anything bad in it and also take out the white blood cells. Then it takes about 4 hours to get 2 bags of blood. Lets just say that the plans I had today didn't happen and Jonathan didn't get to go to a meeting he needed to go to. I'm over it now but geez, I just can't seem to get much done this week. For now on, I will bring my laptop so at least I can do some work, or write, or watch netfilx. After I got one bad of blood I started to feel pretty good and that was when I realized that I really felt like crap earlier. Well what do ya know.
I was not admitted but still got my own room, good thing because that blue mask was about to kill me. I was on the pediatric floor which was strange because everything was smaller and the nurses seem to be scared of adults. I took a nap, ate some hospital food, and then my friend Linda came to see me and we talked and laughed and she gave me a ride home. I found a magazine that I had heard about but had never read, The New Yorker. I love it, it cracks me up. It is a weekly magazine and that would be too much of a commitment and I couldn't read it all, so I may just purchase one every so often. Oh, I turned on the TV and watched a little on the history channel about an ancient city covered by water off the coast of India, in the Gulf of Khambhat. Pretty cool. Yea, I know I don't usually watch T.V. but I was too tired to do anything else, I ended up missing most of it because I would mute the commercials and then forget about it. Then there was the show Modern Marvels that I like a lot, they were showing the Rocket Belt.
As the lady on Napoleon Dynamite said about something she doesn't need, " I want that. "
I had to add this later... I was complaining on FB about being at the hospital for 7 hours just to get 2 bags of blood. My funny cuz, Andy, replied, " Sounds like the vampire's version of the DMV. "
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
Thursday, December 9, 2010
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