WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, December 10, 2010

Good Samaritans and the Forest for the Trees

            You have heard the verse, " The Lord gives and the Lord takes away." Sometimes it's in that order and sometimes it's give, give, take, give, take, take, take, giveeeeees, givvvessss, etc. One day Jonathan broke a tooth and we are faced with a huge dentist bill, the next we are approved for co pay assistance with the L&L society. Have you ever worked overtime to try and get ahead just to have your car break down or your kid need new shoes? Of course. That's what all this feels like except way bigger. We can't get ahead to save our life but we are not sinking either. Our heads are just above the water. Just above where are face is tilted up to the heavens and we are saying, "ok you have our undivided attention, what you say goes, now what?" Maybe that is why Jesus said that its so hard for a rich man to get into heaven, it's difficult to get someones attention that can fix most any problem that arises by themselves and continue to try an fill the void with whatever the latest commercial is about. I'd still like to win the lotto and be given the chance to try and get to heaven.

              I really wish I would have started a list of all the nice things people have done for us, said to us, or gifts that we have received in the last 6 weeks. I'm sure if I search through all the rambling on this blog I could come up with a good list but I'll save that for another day. Lately, I received a ride to Emory by Mr. Frank, a ride to the doctor by my Father and my Poppa Bill, and a ride home from the hospital yesterday by Linda, who also brought some thoughtful and needed gifts. We have a pile of free mulch. We had someone from our small group bring us two meals and our neighbor Betty brought us dinner on Thursday.  My cousin came to help with the yard work. This week we received two gift cards in the mail and the card just said " a good samaritan". FYI, when something is blue like that, you can click on it... Yea,I had to say that.  It was for $100 for Walmart and $100 for Kroger. Holy cow batman. Come to find out, a couple was visiting Jonathan's cousin church and heard about what was going on with us, asked for our address, and if she would follow up to make sure we got it. They still don't want any credit. Amazing.  We are getting part of a cow this week that is organically fed and the meat is going to be very lean and yummy. The man that raised the cow heard about what what going on and is giving us our part for free, minus the butcher cost. Who are these people? People really obey God like this? And if it's not God telling them, people actually have a good inner voice? It really blows my mind. This kind of stuff should be on the news not that someone else was killed today in Atlanta. I would get cable if stuff like this was on T.V., and it didn't cost $70 a month.
Oh the leaves..... 
                  More and more, I'm seeing that this is huge. This is not a story about a tree. I don't know the whole story yet and may never know how many people were affected or will be affected by me having something like cancer and what God does through that. Just today, I emailed a Lady that goes to Athens Tech and started a Be the Match group there. She has had a history of cancer in her family but no one that needed a BMT. She just feels lead to do this. She is so excited and we are going to join forces to put on an awesome donor drive in Feb. Of course this means that we have to approach businesses that are willing to financially support the drive. It's cost about $100 per person to test, analyze, and get the DNA into the system. Of course, those that donate are asked if they will give some money but most are not able to do so or don't know the cost of the testing. Well, this should be interesting, I believe that God will provide the money for the donor drive. I think there is someone really important waiting on a match, just like me. Maybe it's you, or someone you love.

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