WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, January 15, 2011

Jan 15th The snow is finally melting....

  Hello,
          This has been a rough few days home to tell you the truth. Being couped up in the hospital, finally getting home, and then being couped up in the house hasn't helped matters. I will be glad when all the ice and snow is gone so that I can take a walk. Thank God my uncle John and cuz Andy were nice enough to come get me on Wed. They are so awesome!
                Mostly, I have been sick to my stomach but I also developed some mouth sores, which is common with chemo. I'm not sure why since I didn't have any with the other rounds. I have been very tired and have not had much of an appetite.The mouth wash that I have to use tastes like crap and I couldn't work very much at the end of the week. Wow, that's a lot of complaining. I say all that the also say that I have been down, way down. I think the combination of everything made me very depressed. I'm starting to feel better now but each day is struggle to get what I need to get done, done, or even to take care of myself and Evalyn. It has required every bit of my will to get up to do something. Luckily, my mom came to help for the weekend! It's always great to have her her, she is so good with Evalyn.
             I have a lot to be thankful for and I also have to realize that it's ok to have some bad days and it's ok to have some really bad days. Everyone seems ok with that except for me. I'm a weirdo sometimes. :)
Wallace crawled into my robe to make me feel better and to make himself warmer.

She has found her feet! 

Yummy! 

My violet is blooming even though it has been ignored.... made me happy. 
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  1. viridescenceJanuary 18, 2011 at 7:23 AM

    We're always toughest on ourselves, aren't we? It is OK to complain and to feel down. Everybody else is OK with it, so I hope you can be OK with it too. =) Always thinking of you. I need to get on the ball and send you those clothes for Evalyn; I have a real mess going in Emilie's room right now as I try to figure out what she needs for spring!

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