WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Tuesday, March 29, 2011

Day -1, AGAIN

Hello, Yep, stem cells will not be here till later tonight so the transplant will be tomorrow. I think my mom will be glad that she can be here. My day got a little better yesterday and I was able to take a walk off floor for a while. I skyped yesterday with Jonathan, Evalyn, and the puppies. It was bitter sweet of course. It was nice to see her smile and squeal a little when she heard my voice but didn't seem to get into it too much. Poor Wallace and Chloe kept going to the door looking out when they heard my voice. Both dogs slept with my mother in law last night, they miss their mommy. I was also able to do a little paper work yesterday, not near enough to keep up though. Today Jonathan said that Evalyn coughed on and off last night so please pray that she stays healthy. I got a little bit of sleep last night, but you know you can't really sleep in a hospital. I woke up around 3:30 am feeling very nausea and had some anxiety about the transplant. I took something but still feel really sick. I decided that maybe I needed something on my stomach and I was right. I managed to get down a few gold fish and some apple juice and I felt a little better. It has been difficult to eat very much to say the least, even the food I normally like to eat. I have already lost some weight but they say that is normal. I'm really to be over this cold for good so that I can at least go to the kitchen and out in the hall. Everyone that comes in has to wear a mask so it is nice to walk in the hall and see people smiling. So here's to tomorrow!
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  1. AJMarch 29, 2011 at 12:56 PM

    Thanks for keeping us updated. Thinking about you and praying for you. I'll pray extra hard for tomorrow- one more day.... You can make it! I'm glad your mom will be there. I get to watch Evalyn tonight, so give us call if you get bored. :)

    Love Ya!
    AJ

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