WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Friday, April 1, 2011

Day +1 and +2

Hello Everyone!  Yesterday and today I've just been trying to wrap my mind around being stuck in this room and figure out how not to lose it. Not sure if I have figured it out, but I think I'm still sane. My test results still came back positive so I'm still stuck in this room. I will get retested on Monday. The team feels that everything is on course and my counts are going way down. I have been feeling ok except for the general weakness, a little stomach sickness, and my mouth and throat feeling weird. Oh you'll like this.... I pooped my pants today. Yep, it was so gross, and I almost started crying. I'm still not sure what happen but it happened fast. So no matter what happened to you today at least you can say you were in control of your bodily functions if nothing else. I know some other people who are reading this that have pooped their pants.... feel free to share your stories here. Yesterday my cuz Andy came to visit and also Mike and Teddy on Jonathan's side of the family. I'm in the process of getting enough pictures together to post a masked visitors blog but Andy got away yesterday. We had some good visits and today my Mom came and stayed for a while ;). I was able to talk the team into letting me use the exercise bike in my room so I could get some type of activity. They agreed and I rode about 3 miles this morning. I was also able to get a little paper work done today. I don't have too much to say today but I know that a lot of people care and want to be updated. I'm very thankful for that. I figured pooping my pants was enough information for one day :).
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  1. viridescenceApril 2, 2011 at 1:10 PM

    I have pooped my pants before. I think I was 12 or 13. All of us had a stomach virus of some kind, and it was coming out both ends. While I was vomiting, well, the other started to happen too. I cried and then went straight to the washer and started a load of laundry. Gack.

    We all love you very much and are glad things are going well despite being stuck in the room. I will message you on FB about coming out next week.

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