WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Monday, April 11, 2011

Day +11 and +12 Docs say I'm doing great!

                         Hello everyone! My counts continue to come up! Today my WBC's are 1.9 and all I had to get was some IV magnesium this morning. I felt great yesterday and was able to have two sets of visitors. My aunt Lisa made me a beautiful little artificial flower basket, I just love it! She is also wanting to buy my little girl some clothes! My uncle John and talked about music some it it was a great visit. My mother and father in law came to see me too and brought some food and other stuff I needed. It was great to be able to have some energy to work on some crafts and I even got some work completed. My throat and the cough are still giving me some issues and I coughed all night long, so of course I felt pretty bad at first. Thank goodness I still have access to some pain medications because I needed it this morning. I could have taken something for a cough last night, but it can just delay the healing process. Hopefully, I can get a good nap this afternoon. Oh my, they are still looking at Wed for me to leave here.... it's great news.... this last part, since feeling a little better, is starting to fly by. Little nervous about leaving, it's like you become two different people and I know I'm going to have to be taken care of some and watch Evalyn being taken care of may be difficult for me.
                    I do not feel that I have been able to be "a blessing " to as many people here like I was my last extended stay. Mostly because I have not been able to talk, sing, visit with anyone, and felt like crap. Of course, God has been working on me and that is probably more important right now. I'm suppose to get out on Wed if everything is still looking good tomorrow. I will get to see my baby girl and hubby, no puppies yet though. It's still amazes me how all this works and how God has given man the tools needed to figure out all the neat medical procedures that saves lives. Next up... some masked visitors.... I think I missed three of ya!

3 comments:

  1. I am your cheerleader out in Douglasville, Ga. Give a big shout of Praise to the Lord. I was so hoping you would get Wednesday. Your amazing, your attitude and spirit lift others up. I know your thinking it hasn't these last weeks, but sister that the drugs talking. Hopefully you won't even remember all of it, I didn't. Praises for the doctors and nurses that dedicate their lives so we can live.

    charmaine marlow

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  2. I spy some glitter in that flower basket. Mom can never lay off the glitter!

    Hey Charmaine, I'm Heather's cousin and I live in Douglasville too. It's a small world. I'm grateful that Heather has people like you who have been there & can give her support. =)

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  3. Love the flower basket! so glad you are feeling better~ and you are still a blessing to a lot of people, even if you don't see them! =)

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