WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, April 28, 2011

Hello,
            I know that July 16th is still far off but I wanted to get the word out because some are already planning summer and it might take me a while to do invitations and I wanted to get you as excited as I am!!!
            On July 16th we are going to have a big party here in Athens were we live. The Celebration will be 3, well kinda 4 reasons in one. 1. Evalyn will be turning a year old 2. a brief baby dedication prayer 3. Lord willing we will be celebrating the success of the stem cell transplant and mainly that at that point I will be through the most critical 100 days!, and 4. My sis jen is turning 25, which according to research her brain in now fully developed and she can rent a car (love ya sis)
             This will be a day event, and people can pick and choose what they want to do and when ever you gotta go, etc. Just to get you excited. We will have access to the air condition club house, shaded picnic tables, lake, and pool!

7am -11am (and later too if you want)  Fishing Contest on the stocked lake. We will have a pontoon boat to take you around, you can fish off the sides, you can even bring you own boat and fish all day if ya want! Who ever has the biggest and then the most (for kids and adults), will get a prize! We will have people helping the kids fish.

11am: 12:30
Lunch- Cover dish plus BBQ or fish
Short baby dedication with a prayer
Next- Celebration- 3 different cakes (anyone bake?)
A couple games for the olders kids, and one quick game for the adults

12:30 and on...  Swimming, Fishing, volley ball,  Karaoke and board games in the club house, or take a nap!

Between Jonathan and I we have 5 sides of the family and all our friends here at the farm. It should be a great turn out and the first time  I will be able to be around a large crowd, yeaaa.

Sounds fun huh?? So save the date. You all have helped us make it through all this and I want you to have some fun!

Invitations to come!

Love,
Heather and Jonathan
and Evalyn Rose

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