WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, April 14, 2011

I'm Out!!!

Hey Everyone!
                 I did get to leave the hospital yesterday and it was wonderful  and overwhelming at the same time. It was such a weird feeling leaving after being couped up in that room. And yes, there this is a lot of fear of getting sick and having to go back, but they said all these feelings are normal. Ha, what is normal anymore. I could barely stop crying as I was leaving the floor and then we got into the car and I started crying again! I'm at my aunt Sheri's right now for a couple days but hope to be back home Friday evening or Sat morning.
                    Seeing Evalyn after not seeing her for two weeks was amazing. It almost felt like a daze. She looked at me a smiled and made a happy sound, came to me, and gave me a hug and kiss. It was wonderful. I can't believe all the stuff she has learned how to do in just 3 weeks! Jonathan took her back to Athens that evening so I could rest and go to my appointment on Friday. I can't wait to be home. My mom has already been amazing with helping me take care of myself and making sure that I eat. Let me tell ya, today, I ate a lot! My docs will be so proud. I am having a little rash thing going on and still coughing but hopefully those won't be big issues. I see Dr. K tomorrow, which always makes me feel better. One of my medications give me the worse taste in my mouth, it's awful, there has to be something I can do about that. Energy is still low, but I'm going on walks and trying to do more and more to get stronger.
                       Right before we left the hospital and man stopped by, he posted on the last blog, and was very encouraging. He said that he has seen my name on my door and recognized it from the Fox story and then looked me up on the web. I was so out of this this round in the hospital, it didn't really get to say how much my nurses and nurse tech did for me and how amazing they are. There was also a lady that would volunteer and play her harp in the hallway, it was so peaceful to listen to her play. There were also volunteers that would stop by to say hey and one day a sweet lady walked the floor with me. I heard that some of my friends did some yardwork for us and someone else sent us some money. We are truly blessed. I know there will be a time that God will call upon me to do the same for others and I hope to do so with gladness in my heart.
Leaving the hospital 



My uncle Tony with his two grandchildren
                    
 I will let you know how my appointment goes tomorrow!

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