WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Saturday, May 14, 2011

Emory Update May 13th, 2011 DAY 44

                      Praise the Lord! My CMV levels went down from 45,000 to 9,000,  not sure what all the numbers means but sounds good! That means the medication is working and I don’t have to be on an IV or change medications at this time. I also got moved to once a week next week. SWEET! Everything else is looking great too and there were no changes in meds at this time. The pain from coming off the prednisone has moved to more cramps in my hands, feet, and legs, but again I know this is temporary, I’m a pretty tough cookie by now. There is also some swelling in my feet still and my cheeks so don’t think I’m getting hefty, even though I am eating us out of house and home. Steroids much trick you body into thinking you eating for 3.  Pain is all relative at this point so all this temporary stuff should be a piece of cake….. that I will eat. My lungs sound great, my voice is coming back again, I’m feeling pretty good, getting into to some jeans that hasn’t fit in a while, but he did say no to sushi for now…. Win some lose some, but always push the envelope! Thanks so much for your prayers. I’m on day 44, far from the danger zone, go ahead you can sing, but moving on out, that’s a song too.
                      The best part of the day was spending time with my Poppa Bill. I don’t take my meds until late on Friday mornings because my appointments are usually at 7am and they have to check my labs without the meds sometimes….. So I’m able to drive that early in the morning. And boy did I drive…. My Poppas black, smooth, Cadillac.  I love this car. I feel like the queen of England. In fact, next time I drive, I will have to wear a vintage hat and maybe some gloves…. Yea. So I past my driving test that morning. Poppa drove on the way home and past his driving test also. We had a wonderful time talking and hearing old stories, many will be in other blogs later.  The cancer patient and the old man were a little sneaky today and didn’t tell many people that we were going together. Hee Hee. Poppa has been wanting to be a part of all this Emory stuff since the beginning, he is a Dr. ya know, and I would never let him come down there because I didn’t want him to pick up anything, but now that I’m seeing Dr. Khoury so early, there is no one there. There was a driving fluke with poppa a little while back and I hadn’t rode with him since so it was time, and it ‘s not time to take the keys away…. Right Poppa? We always like to ask for forgiveness before permission on certain matters anyway, but we didn’t ask for forgiveness. On the way back through Athens, Pop showed me houses that he had build and bricked through the 40’s-60’s and I was able to write now the addresses.
So many blessings happened today but I’m going to share them in a personal blog.
God Bless!
Love, Heather

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