We got the results back from the tests on Friday. The CT of my lungs looked great, not sure why I’m so short of breath but it’s nothing huge. The MRI came back that I do indeed have too much iron stored in my body due to all the blood transfusions which research shows can cause other diseased later on. The body is unable to get rid of extra iron on it’s own for some reason so I have to start a new medication called Exjade. I had to sign a release to get the prescription, get it from a special pharmacy, and tomorrow I have to talk to someone about side effects. I have had some bad side effects to medications but have not seen a list like this where the common side effects look like rare side effects of other medications. And…. It’s says not to take with prednisone. Yea, yea, I’m sure that the benefits out way the risks but I’m freaking out a little here. Please pray that the side effect are nonexistent and the iron gets out of my body soon. Funny, Just 8 months ago, I was too low and was taking iron.
There is a lot going on with Evalyn being so active, lack of sitters, me trying to work, Jonathan about to start full time, med changes, insomnia, horrible cramps, clothes not fitting, blahhhh. I’ve been generally happy go lucky but maybe since I didn’t sleep last night and then found out about that, I just feel ill. So ill, that I had to leave the house and walk around Wal-Mart, yes I did have stuff to get, because I needed to get some exercise and it was too hot outside to do anything. I just wanted to be alone for a little bit and didn’t want to ruin Jonathan and Evalyn’s fun by being a negative Nancy. After the laps around Wal-Mart and purchases needed c chocolate, getting the lady at the case register to agree to become a Be the Match donor, I felt that I could return home with a smile.
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