WELCOME

Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!

Please read, comment, enjoy, learn, grow, LOVE LIFE.

Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.

Thursday, July 14, 2011

Medical Update 7/14

Hello everyone,
           We have been so busy with work, Evalyn, finishing touches on the party, I have not had a chance to update you, or just write down for memories how I’m feeling. I had another medication change this week so that all always throws me off. I don’t know if the heat has made it worse, or what but my feet are as swollen as they were last summer when I was pregnant. Really, will I ever get to wear the 25 pairs of cute shoes I have again? How is it that I look and feel pregnant two summers in a row? Geez. I’m going to have to go get some support socks to sleep in today to help the swelling go down at night. I’ll die if they ask me “When are you due?” I’ll just die, right there, and may bite the person that tries to give me CPR…. Just let me go in peace.
           The cramping started again with the lowering of the steroids and you would think I would be sleeping better but maybe I just don’t sleep. I could make a killing if I could figure out what to do in the middle of the night to bring in income from home. Well that sounds kinda bad , I take that back. I had some headaches, stomach aches, and just whole body aches. I’m sick of taking 13 pills in the morning and more at night, weighing 25 lbs more than I should, and I’m tired of telling people about it. But what if I become one of those people who just lie and say “I’m fine”, “I’m great”. Nah… sometimes I just say,” I’m ok right now but it depends when you ask…. 3 hrs ago I was laying in the bed with cramps that were making  cry, 5 hours ago, I was playing the guitar and taking care of my Evalyn Rose.” People sometimes what to hear “fine” so I enjoy seeing their faces. Oh yea, I’m sick of being hungry. Eating is like a chore when your on this medication because you can think of anything else when you feel that your stomach in caving in.
           It’s 5:30 am and I think I got up at 4 am, I better go lay back down, I don’t think tomorrow is going to be more restful. The good thing is, mentally and emotionally, I’m feeling pretty good. I try not to stress too much, day “I don’t know” or “I don’t remember”, continue to choose when to talk on the phone, lay down when I can, and just do the best I can everyday. I’m seeking the Lord’s guidance and that all I can ask of myself. Is my bathroom dirty and floors need to be vacuumed?  Yep.  Oh well. 
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