I'm not sure if there is an area of my body that does not hurt, ache, is swollen, or throbbing right now. Reasons? God only knows. Right now, I have a piggy foot, a piggy belly, a piggy neck that makes more snore and my throat hurt ( due to the steroids ), bone pain in both knees that Dr. K says is common in the younger patients, bone pain in my back, a weird earache, and I'm sure there is something else but you get the point.... oh yea, not sleeping but at least I got some paper work done in the middle of the night.
Friday is my 100th day! So that is super exciting. I guess it doesn't mean that I'm still not going to have issues. I actually have an appointment that day at Emory and want to do something to let everyone know that it is my 100th day. I could get a 100th balloon and have my own private parade, write it on my forehead, carry a sign, I don't know what to do yet. I'm suppose to go to a monastery for a weekend retreat and hope that all this crap doesn't keep me from going.
So for now it's short and sweet cause it's been a difficult week so far. Thank goodness my mom can can't stay away from Evalyn for more than two weeks and came to help out! By the way, she said Grandma :)
WELCOME
Hello,
Welcome to my Blog! Yes, I have been in the fight of my life against Leukemia, insomnia, depression, side effects of medications, molting skin, pooping my pants and this list goes on.... however, I still love my life, and that's what this blog is about Real Life. I hope to meet others who trails have brought them closer to the Lord and molded them for the next step in God's will. In January 2011 , my family, physician, and Be the Match was featured on a Fox 5 news story about bone marrow donors and transplants. In March, I was interviewed on Atlanta and Company along with Be the Match. I was chosen to sing the national anthem at the Be the Match Run last year and will also be doing it this year, along with some other songs. My team, no thanks to me, raised over $4,000 and raised more than any other team! Please join my team this year or consider donating here at the Run those Stem cells out ! Team I was also chosen for a patient advocacy panel for the international council meeting at Be the Match in MN in November. How exciting!! I ended up not being able to attend due to the relapse. I had hoped I could help raise awareness about how easy it is to sign up to be a donor and how many people need your help! Please go to bethematch.org and sign up! I was able to have my bone marrow (same as stem cell) transplant at the end of March thanks to a 22 year old donor oversees that I hope to meet her one day. As I came up on my 6th month mark and continued to add more normal activities to our lives, I relapsed, meaning that the that the cancer had mutated and the leukemia came back. I spent 2 more weeks at Emory and some other nights here and there and now I'm on a drug from the FDA. I have a compassion waiver so I am able to get it. I have to take it day by day sometimes hour by hour. Time keeps moving and my little girl is growing up. I'm lucky that I'm getting to see it. I continue to praise God for his wonderful blessings he has shown us including my wonderful husband Jonathan, baby girl Evalyn Rose, supportive family and friend, great medical care, new readers, and the chance to make a big difference, even if that means being a Lab Rat.
God Bless You!
Please read, comment, enjoy, learn, grow, LOVE LIFE.
Most Recently I have started a booth at a local consignment store with handmade jewelry from friends, crafts, and my own art from recycled materials. It is called DAY by DAY. God was very clear with me starting this. Please look over to the right of blog and click on Day by Day to see some pictures. I'm just getting started but I am taking orders from people that I know. You will be able to personalize items, etc. I just haven't decided how I will be selling them via internet yet. But for now, the jewelry is at A Weekend A'fair in Athens, GA and will hopefully be at some stores downtown soon.
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